Oxaloacetate

[Martin aka paused||M.E.]

Well folks,
I just wanted to solemnly inform you that oxaloacetates, which Dr. Kaufman stated an 80% response rate on the IACFS / ME did absolutely NOTHING for me at 500mg a day.

I've heard the same thing from all of his other patients on Twitter. So: I think you can save yourself this investment!

Martin

 

[geraldt52]

Sounds like just another tall tale of "success" by a "ME/CFS specialist"...hardly a new development. We should all stop confusing doctors who respectfully acknowledge that we are sick with doctors who can actually do anything to help us...and save ourselves a lot of money chasing rainbows. With no biomarkers, no way to tell who actually has "CFS/ME, and no way to track actual improvement, it all seems to just add up to a lot of nonsense. At $500 an hour, no insurance accepted...

 

[Martin aka paused||M.E.]

Sounds like just another tall tale of "success" by a "ME/CFS specialist"...hardly a new development. We should all stop confusing doctors who respectfully acknowledge that we are sick with doctors who can actually do anything to help us...and save ourselves a lot of money chasing rainbows. With no biomarkers, no way to tell who actually has "CFS/ME, and no way to track actual improvement, it all seems to just add up to a lot of nonsense. At $500 an hour, no insurance accepted...

Ok but don't forget that he is one of those who actually helped many

 

[seamyb]

Ah pity. At least you're not reporting that you're significantly worse off from taking it.

On to the next experiment.

 

[Martin aka paused||M.E.]

On to the next experiment.

I won't give up!

 

[nerd]

What's the suggested mechanism of action? 80% sounds too good to be true to me for a monotherapy.

 

[5vforest]

I'm sorry it didn't work. Thanks for letting us know. I hear really good things about Kaufman, so I found it surprising that he would make the famous "80%" statement tbh.

 

[seamyb]

I'm sorry it didn't work. Thanks for letting us know. I hear really good things about Kaufman, so I found it surprising that he would make the famous "80%" statement tbh.

Yea, like there was a post on here earlier about 2% of PwME had activated shingles. I think to cure 100% of PwME we need 50 of these.

 

[geraldt52]

Ok but don't forget that he is one of those who actually helped many

Fair enough, but that 80% claim just screams BS, no matter how respected the source. And, if he truly has "helped many", what condition were they actually suffering from? No biomarker...no idea what a person who was supposedly helped was suffering from.

The only thing of value I can see that any ME/CFS specialist can do is to exclude other treatable conditions, which any doctor should be able to do...for a hell of a lot cheaper than any of the so-called ME/CFS specialists. Admittedly, most doctors really don't give a shit about complicated cases. And while the "specialists" are at least sympathetic to our plight, I fail to see any progress they've made over many decades. And in general I find their prices and their not accepting insurance to be profiting off of the desperate.

I even lost any confidence whatsoever in patient reports of improvement after the double-blinded Rituxan debacle, which showed better results from the placebo than the treatment. So why should I have any confidence when someone says something is "helping"?

 

[Martin aka paused||M.E.]

So why should I have any confidence when someone says something is "helping"?

True, but I know two of his patients who surely have ME and went from bedridden to over 80%

 

[5vforest]

Personally, I am willing to pay for a doctor who will help me with my "experimenting", which is how I view doctors like Kaufman, etc.

I agree that patient reports of improvement are usually next to useless.

When my doctor tells me that many of their patients have had success with X, I have learned that this usually will have no bearing on my own experience.

 

[GlassCannonLife]

True, but I know two of his patients who surely have ME and went from bedridden to over 80%

You make it sound like it's worth trying!

 

[Martin aka paused||M.E.]

You make it sound like it's worth trying!

Not with this supplement. With him as a doctor

 

[Shanti1]

Thanks for reporting back. I saw that conference presentation and decided not to try it due to the cost to reach a therapeutic dose with the available over-the-counter products.

 

[leokitten]

Did I read somewhere that some people didn’t get much improvement at 500 mg 2x day but at 1000 mg 2x or 3x day it might work much better? So 500 mg 1x day might not do much. See Cort article on Health Rising

 

[Silence]

Is this something he sells or can it be bought online?

 

[leokitten]

Is this something he sells or can it be bought online?

Oxaloacetate is sold from the same manufacturer as Jubilance or Benagene on Amazon and other sites. Jubilance and Benagene are identical.

 

[GlassCannonLife]

Just saw the new trial will be on this.. Has anyone found it beneficial?

 

[Breagjam]

I tried up to 1000 mg/day and did not get benefits sadly.

 

[mitoMAN]

We are going to lab test an affordable china supplier (purity and heavy metals etc) with 300$ per 1000gram. If you are interested DM me for our discord.