Other médical conditions

warriorgirl

warriorgirl

Messages
29
Location
Montreal, Canada
Hi,

I am just curious about other diagnosed medical conditions CFS people have. It often seems to come with thyroid issues and fibromyalgia. Oh and IBS. What other conditions do you have ? (I know it’s a very personal question and I understand if I don’t get many answers).
 
Thinktank

Thinktank

I'll fix it myself...
Messages
1,650
Location
Europe
IBD (crohn's), Astma + bronchitis, food and inhalant allergies, MCAS, dysautonomia (but negative tilt table test, it was a rare "good" day and the examination room was too cool in temperature).
Also have inflammation in pretty much every organ except the kidneys, so everything that ends with -itis :D
 
Moof

Moof

Senior Member
Messages
778
Location
UK
EDS, autism spectrum disorder, fibro, dysautonomia, psoriatic arthritis, B12 malabsorption, eczema, MCAS...regular tests have never picked up any kind of thyroid issue, though, despite more women in my family having Hashimoto's than not.
 
Gingergrrl

Gingergrrl

Senior Member
Messages
16,171
Dysautonomia/ POTS, Hashimoto's Disease (thyroid), MCAS, and LEMS. It took a solid five years to figure this all out and multiple wrong diagnoses along the way.
 
A

Aerose91

Senior Member
Messages
1,401
Gingergrrl said:
Dysautonomia/ POTS, Hashimoto's Disease (thyroid), MCAS, and LEMS. It took a solid five years to figure this all out and multiple wrong diagnoses along the way.
Click to expand...
Same here. Im at year 7 and i just had mast cell activation diagnosed
 
C

Cog71

Messages
47
Location
Los Angeles
Moof said:
EDS, autism spectrum disorder, fibro, dysautonomia, psoriatic arthritis, B12 malabsorption, eczema, MCAS...regular tests have never picked up any kind of thyroid issue, though, despite more women in my family having Hashimoto's than not.
Click to expand...

Do you mind me asking what you take for your Psoriatic Arthritis? I have just this week gotten this diagnosis after ten years of being in the Fibro/CFS/Lyme Disease wilderness whilst never feeing that what I had fit perfectly into any of these.

I had no idea you didn't actually have to have psoriasis to have psoriatic arthritis! It can manifest as extreme joint, muscle and tendon pain, allodynia and excessive fatigue. But now that we know, we have to work quickly to hopefully prevent deterioration inside my body

I've been offered Otezla first, before perhaps moving on to one of the biologics.
Just wondered if you had any thoughts.

Thank you
 
Moof

Moof

Senior Member
Messages
778
Location
UK
Cog71 said:
Do you mind me asking what you take for your Psoriatic Arthritis?
Click to expand...

I just take sulfasalazine. At the moment only the joints in my hands and lower spine are affected, so they don't want to put me on anything stronger. Many of my finger joints are fused already (whilst I was waiting for diagnosis – it took ages because I don't have psoriasis and the doctors didn't ask me whether I had a family history of it!), and obviously there's nothing they can do about that now. I'm stable on sulfasalazine, and they'd only move me onto another drug if I developed problems in new joints or had a huge flare-up.

I really hope you get onto a regime that stabilises your symptoms quickly. It's not much fun, is it! I guess I'm lucky to have relatively mild disease; but unlucky that some of the swelling and joint damage I experienced was due to inflammatory osteoarthritis (apparently it's possible to have this mixed type). There's no treatment at all for this, unfortunately.

According to my consultant, up to 20% of people with PSA don't have psoriasis at the onset of the arthritis, but most of them will develop the skin disease later. A few never do, though. Bizarre!
 
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