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Optic Neuropathy and CFS correlation?

Messages
11
I have had severe dry eyes for 10 years now. It has gotten so much worse with my CFS (which I have had for 14 years). All of my symptoms get worse every day...

I have seen countless opthamologists and eye specialists who have said my eyes look perfectly healthy, no dry eye spots, and they do not see anything wrong. I recently went to a large dry eye/cornea clinic and they mentioned I have neuropathic eye "pain." I do not have any pain -- I just do not have any moisture in my eyes, but they said the dry sensations are another word for the vague word of "pain." They did a cornea microscope test to check on my eye nerves and found some nerve abnormalites. They suggest Lyrica, but I have heard horror stories. I began to do research and came across: https://www.sciencebasedhealth.com/...MI-5_v2of92wIVkIF-Ch2yYgK1EAQYAyABEgLrL_D_BwE

The ingredients are a lot of "natural" ingredients that are supposedly great for CFS patients (COQ10, Alpha Lipoic Acid, NAC, Omega 3, Bilberry, etc).

Do you believe this supplement can help CFS and the eye nerves and treat the neuropathic optic "pain"?
 

Wolfcub

Senior Member
Messages
7,089
Location
SW UK
I have had a vague head pain which is around my right eye from the word go....the first day I was unwell March 27. It really is no more than a twinge so I am not complaining, but it always comes back when I am more exhausted through PEM after having not rested and done too much. I wondered why I am so nagged by this ache somewhere around/over one eye.
Nothing was found to be wrong with my eyes, no intracranial pressure etc, and I reckoned it was some kind of neuropathy. I am supposed to see a neurologist in 3 months.
I didn't know neuropathic optic pain could be associated so I find your post very interesting @Sapphire89 I hope you find someting to help your eyes. It's worth experimenting with the supplement and listening to your body to see if it suits you.
 
Messages
71
You might want to get tested for Sjogren's. I have it and ME/CFS. It causes dry eyes and mouth. I take Restasis and Plaquinil to control some of the symptoms of SS.
 

ebethc

Senior Member
Messages
1,901
astaxanthin helps my eyes... fwiw, they feel less inflamed.. I have chronic sinusitis, so I think (but don't know) that my chronic sinusitis / sinus inflammation is the core problem, so that's what I work on...the astaxanthin is anti-inflammatory, and also helps sinus inflammation... good luck
 

rel8ted

Senior Member
Messages
451
Location
Usa
I have had severe dry eyes for 10 years now. It has gotten so much worse with my CFS (which I have had for 14 years). All of my symptoms get worse every day...

I have seen countless opthamologists and eye specialists who have said my eyes look perfectly healthy, no dry eye spots, and they do not see anything wrong. I recently went to a large dry eye/cornea clinic and they mentioned I have neuropathic eye "pain." I do not have any pain -- I just do not have any moisture in my eyes, but they said the dry sensations are another word for the vague word of "pain." They did a cornea microscope test to check on my eye nerves and found some nerve abnormalites. They suggest Lyrica, but I have heard horror stories. I began to do research and came across: https://www.sciencebasedhealth.com/...MI-5_v2of92wIVkIF-Ch2yYgK1EAQYAyABEgLrL_D_BwE

The ingredients are a lot of "natural" ingredients that are supposedly great for CFS patients (COQ10, Alpha Lipoic Acid, NAC, Omega 3, Bilberry, etc).

Do you believe this supplement can help CFS and the eye nerves and treat the neuropathic optic "pain"?
I would try anything but Lyrica, but that is from the mouth of someone who had one of those horrible experiences you have heard about.

I also agree with @TenuousGrip, "You may want to look into autologous serum eye drops and scleral contact lenses."