• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Only $6,000 for major double-blind, large-sample immune-abnormality ME/CFS study! Please donate now!

Sushi

Moderation Resource Albuquerque
Messages
19,935
Location
Albuquerque
give me a "catchy" text (my english is not good) and I can put it on cca 15 ME facebook pages

Hi @Tuha! that would be wonderful!!! But my English is far worse than yours!! @Sushi, PLS help again!! :)

Give me something in "your" English, and I can "make it nice, ;) pero no hay tiempo para escribir algo a mí mismo, mi querido amigo. :p (I hope I didn't just say something horrid and inappropriate in my miserable Spanish!

Sushi
 

Sasha

Fine, thank you
Messages
17,863
Location
UK
I would also appreciate if someone could recommend some other platforms where I could also write about this project. I've been lost for the last 4 years since I recovered enough to start studying, and have actually forgotten about other places!

Co-cure would be a good one but you need someone with direct posting privileges (long story). I'll PM someone I know.
 

serg1942

Senior Member
Messages
543
Location
Spain
give me a "catchy" text (my english is not good) and I can put it on cca 15 ME facebook pages

Hi @Tuha! Taking your word, here's the "catchy" short text!:)

Thank you very much in advance!


Characterization of immunological biomarkers in ME/CFS:

CONTRIBUTE TO THE CROWDFUNDING!

An internationally Published, Double Blind, Cross-Sectional Study with a Large Sample (200 patients/100 controls) Showing Immune Abnormalities IN ME/CFS is Just less than 6000 € Away!

HELP Sharing, publishing, posting and/or donating!!! (Read details on the link below)

Deadline for Donations: March 29, 2015

1- PAYPAL or Credit card:

Go to the website of ASSSEM (http://www.asssem.org/), and click just below "Donations OBJETIVO12000", on the "DONATE" button (on top of the page, below the first paragraph, to the right).

2 -Wire transfer:

IBAN: ES0901828732100201553888
SWIFT/BIC: BBVAESMMXXX
Bank: BBVA
Beneficiary: ASSSEM,
Concept: “Objetivo 12.000”

MORE INFO:
http://forums.phoenixrising.me/inde...rmality-me-cfs-study-please-donate-now.36035/
 

serg1942

Senior Member
Messages
543
Location
Spain
Hi @Sushi, I need your help again as I cannot edit my first message! The following link is the English version of the project "Characterization of immunological biomarkers in ME/CFS", in good English, this time translated by a native. So I would very much appreciate if you could change the URL linked to the phrase "read the entire project", in the forth line of the message, for the following one:

https://drive.google.com/file/d/0B3CcKvRcY8pZNW9NQ054OXNpSXc/view

Or for this other one, in case you see it doesn't work well from the USA:

https://docs.google.com/file/d/0B3CcKvRcY8pZNW9NQ054OXNpSXc/edit

Muchas gracias!
Sergio
 

serg1942

Senior Member
Messages
543
Location
Spain
Hi @acer2000, they are updating the "meter?" every other day or so, becase they are inundated at the moment... I think they did so yesterday or the day before, so what @Bob says must be accurate, pobabbly a little more (€5,344 to raise).

Thank you very much @Tuha! with all this help should be enough I hope... They are already seeing patients, so the project is underway!

Yes @Sushi, that's what I wanted, the official entire project, translated into proper English finally! Gracias!

Thank you @Bob, sounds really good! I don't have a tweeter account, so that's very helpful too!

Ok, so let's see if this last "push" is enough to reach the target! I will let you all know how it goes!

Best!
Sergio
 

taniaaust1

Senior Member
Messages
13,054
Location
Sth Australia
I've just seen this and I do want to donate but first I want to know what happens if the full amount isn't reached by this deadline?

You could see if Cort will put something on his site about this to help with donations if it hasn't already been mentioned there http://www.cortjohnson.org/