Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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That story at the beginning
Pondering the Point: can massive rest lead to remission or full remission? maybe, but not in my case....
Maybe the third group had a second or third hit that wiped out more systems and pathways.
I'm always both hopeful and frustrated by thinking about it like this. I can't help crashing since I live alone and thinking I'm making my illness worse by doing what I need to stay alive isn't heartening. I guess you do what you can, right?Yes, maybe we have a spectrum from those that recover spontaneously with only modest life changes, those that will recover in 1-5 years with significant rest and those that deteriorate or stay bad. Maybe the first group are what have been called "post-viral fatigue syndrome". Maybe the third group had a second or third hit that wiped out more systems and pathways.
That story at the beginning of the graduate student who recovered from being bed-bound for some (<5) years.
"The crash restarts the disease."