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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Just be aware of the bit where it says PWME are not immunocompromised or more susceptible to opportunistic infections. It's probably irrelevant to your procedure, but if you send the whole document to the docs, it might get in your record.Thanks, @SOC - that's thorough! I can send that to them ahead of time.
Just be aware of the bit where it says PWME are not immunocompromised or more susceptible to opportunistic infections. It's probably irrelevant to your procedure, but if you send the whole document to the docs, it might get in your record.
(I don't know what kind).
A while ago when I had to have some relatively minor surgery (although technically they called it "major surgery", for their own ineffable reasons). I went to great lengths to meet with the anesthesiologist and have him talk by phone with my specialist about the unique situation of PWME. In the end, the anesthesiologists ignored everything my specialist told them because, "Come on, we give anesthesia to emergency car crash victims just fine and that's way worse than what you have, so let us decide what you need." It took me several months to recover, not from the surgery, but from the anesthesia.Thanks, @Apple - not much of me at the moment and I don't think I could cope with being wiped out any further. Thinking I might have to do without the sedative.