Olympic Skier beat Lyme Disease

[SOC]

Yes, I ran the LTT and my values were 0, 1, 0. Negative.

I am positive for Bartonella, though, by PCR.

Sushi

Did you do antibody tests, or just PCR for Bartonella? I'm negative by antibody, so I think the doc is therefore not planning a PCR test. I'm wondering if that is reasonable, or if antibody tests often miss Bartonella.

 

[Sushi]

Did you do antibody tests, or just PCR for Bartonella? I'm negative by antibody, so I think the doc is therefore not planning a PCR test. I'm wondering if that is reasonable, or if antibody tests often miss Bartonella.

I did antibodies with Igenex but Ignenex only tests for antibodies on 3 strains of Bartonella (as I remember) and there are over 30 strains. I think Igenex tests mostly for the cat-scratch strains and those are not the ones being found most often in ME patients.

The PCR that that I had tests for many more strains. Galaxy Lab in NC is the Bartonella "king" (queen?) in the US I think. The PCR test I did was Redlabs.

Sushi

 

[paquito]

Hi Joshi,

Yes I'm the pyroluria one, nice to see you again!

The test was antibodies, less than 40% accurate so really pretty useless, it came back negative.

Do you have any contact details for Dr Trevisan?

Cheers
P

 

[joshi81]

Paquito you can phone to his secretary to take an appointment 040 3992056 that's her number.

 

[Alexandru Matei]

I was also diagnosed with Lyme and co-infections in the summer of 2012, but I was suspecting something is going on for a much longer time. I just went through a horrible time lately, it's slowly getting better with treatment.

This is such a complicated disease, the co-infections are the hardest to treat (test are unreliable too) so it's hard even for doctors to treat it properly due to unreliable testing. Often co-infections are missed.

 

[joshi81]

Hi alexandru, wich testdi u run which came back postive?

 

[end]

Tutti le Italiani qua ora

Bit of a hijack - Created thread on main forum.

Here's another high profile athlete being infected with Lyme and his battle for treatment. Sam stosour's recovery: http://www.samstosur.com/news/my-battle-with-lyme-disease/

 

[Sushi]

She just skied today. It was just on NBC's rebroadcast. They mentioned that she had beat Lyme and that it was a triumph that she was competing. Unfortunately she fell, but she competed.

Sushi

 

[abporter]

T

She just skied today. It was just on NBC's rebroadcast. They mentioned that she had beat Lyme and that it was a triumph that she was competing. Unfortunately she fell, but she competed.

Sushi

Thanks for sharing Sushi. I just watched it and my eyes watered up several times. Skiing was the sport that I was best at and loved the most. It was encouraging to see that even though it may take years of treatment, it is possible to recover.