• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To register, simply click the Register button at the top right.

NPR: For People With Chronic Fatigue Syndrome, More Exercise Isn't Better

Cheshire

Senior Member
Messages
1,129
by Michaeleen Doucleff
Health organizations are emphasizing that ME/CFS is not a psychological disorder and that standard forms of exercise do not help. Instead, they're acknowledging that exercise can make the disease much worse unless doctors and patients are very careful.

The Centers for Diseases Control and Prevention has already revised its patient guidelines on ME/CFS and is currently revising the ones for physicians.

The action by the federal agency is a significant shift in the years-long controversy over diagnosis and management of the disease, which is characterized by months of incapacitating fatigue, joint pain and cognitive problems.

And last week, the National Health Services in the U.K. said it would reassess its guidelines for ME/CFS recommending exercise, after 20 members of Parliament signed a petition urging a review.

http://www.npr.org/sections/health-shots/2017/10/02/554369327/for-people-with-chronic-fatigue-syndrome-more-exercise-isnt-better?utm_campaign=storyshare&utm_source=twitter.com&utm_medium=social
 

Yogi

Senior Member
Messages
1,132
An important bit in this article is that it doesn't just take aim at PACE trial but also the very foundation that Wessely/White/Sharpe's whole life long careers and research were based on.

The controversial recommendations on exercise can be tracked back to an influential but erroneous paper published in 1989, in which British doctors offered a "new approach" for treating the disease.

First time I have seen this referred to in mainstream media.

P.S. "erroneous" seems rather generous to describe this paperl!

This is major turning point for the psychs.

Great article and we should thank Michaeleen Doucleff

http://www.npr.org/people/348778932/michaeleen-doucleff
 
Last edited:

Kalliope

Senior Member
Messages
367
Location
Norway
Last edited:
Messages
80
On the one hand, it is great that this kind of stuff finally gets out there.

On the other hand, we are in a situation where we are actually happy about articles that basically say 'breaking news: smoking more and more does not actually cure lung cancer'.

Well, I'll take it for now.
 

viggster

Senior Member
Messages
464
Very cool. I know that she spoke with Dr. Lapp by phone, but I guess his comments didn't make the piece.
Well, his comments informed the piece and if the interview was a good one, the reporter gained a deeper understanding of the issues. Also, talking to a doctor can help a reporter find appropriate patients to talk to. Too often interviewees feel like they've wasted their time if they talk to a reporter and don't get quoted. But that's rarely the case.
 

Andrew

Senior Member
Messages
2,513
Location
Los Angeles, USA
I'm thrilled that we have this information we can show to doctors. At the same time, I can't help but feel anger toward all these agencies who refused to listen to us all these years, even when we offered evidence they were wrong.

I wonder if anyone at the CDC feels remorse for all the harm they have done to us.