@MichaelK , you are a wondefu friend, I'm almost crying to read how you stand up for him and help, a big wow for you!!!
I did not read all the thread so some things I write may be repeaters.
Tomorrow he gets the next syringe. Last time his condition improved the days after the injection until he tried to go to the bathroom and crashed.So I hope there will be the same effect in the next days. But you are right. Perhaps it is better to get hydroxoB12 only.
That is a good sign, but he must not try to use that little energy for the bathroom, I think there is a commode now? or something, imho he should conserve all little energy that he has to give his body a chance to get back toward a sort of balance.
I agree with the former poster about the folic acid, it is useful to see what he did take as supplements before and in what amounts.
Until now we don't have a viable alternative to Fresubine. What do you think is the biggest problem with Fresubine? Sugar? Something missing?
Martin told me that he has problems mit lactose and fructose and he also tried to avoid gluten.
so those three need to be avoided, I think there are many patients with ME who cannot handle them, same goes for cowsdairy, I would avoid that.
I would not touch fresubin with a tenfoot stick..., it is loaded with stuff that patients with ME tend to react to badly, And indeed, the vitamins added do not look to well either.
Milcheiweiß,= cowsdairy
Pflanzliche Öle, which ones? what quality?
Zucker , really better not.
If I were well and needing to care for you friend I think i would go for homemade broth, chicken and calfsbroth, probably put it through a sieve for him so that no thingies ( herbs ans such) would be in the mug ( or babybottle)
Maybe cocosyoghurt or goats yogurt, these are great to add oils, linseedoil and hempoil are good.
If his digestion can handle eggs, scrambled or boiled ( not too hard)
for carbs you may make porridge from riceflakes, the way I make that is first to boil three dried plums for a quarter of an hour, then add riceflakes, let stand for a quarter and boil. If needed put through a sieve. i think the easier way would be to dump the ingredients in boiled water in the evening and cook them in the morning until very soft.
depending on what he ate/could eat before he crashed you can add things like lentille ( the soft orange ones) or green peas ( those that are already put into halves)
further keep out all things chemical as much as possible, smells, additions in food , I remember I even reacted badly on the soap that my linen was washed in. Every chemical that comes into his body must be processed and his body is now not able to do that.
for vitamins and minerals you may want t use this one, is for children, very complete, very clean, all vitamins are in the good, easy absorbable form
https://nl.iherb.com/pr/Thorne-Research-Children-s-Basic-Nutrients-180-Veggie-Caps/18435
for kids 6 caps a day, caps are very small, but if needed can be put in a little porridge or broth. Maybe slowly build up the dose. Start with two caps, one in morning one in evening, something like that.
and magnesium, maybe some more experienced member can add a good brand, I use magnesiumbisglycinate, for me that works the best. ( look what he did use already)
take all things slow and careful and when he perks up a little, keep him horizontal or he'll crash again.
yes I know it's awful not to be able to go to the toilet, but waiting it out will definitely better his changes.
a very big hug from me for the both of you
