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Notable books on ME or CFS (not just in English!)

mango

Senior Member
Messages
905
Trött är fel ord: Om att leva med den osynliga sjukdomen ME/CFS
by Britt-Marie Thurén (editor)

ISBN: 978-91-86819-69-9
Language: Swedish
Published: 2011

I would definitely recommend it, it's fantastic! :)

ETA: Will you add it to MEpedia? This book deserves all the attention it can get :)

ETA: Here's a link too: http://rme.nu/bokbestallning
 
Last edited:

Effi

Senior Member
Messages
1,496
Location
Europe
@Snow Leopard I haven't read any of these books, but they're all novels in Dutch about ME/CFS, most of them written by patients. (from newest to oldest)

I shouldn't have died yet

True story of an ME patient who wasn't taken seriously when she developed new symptoms, which turned out to be late stage breast cancer. By then it was too late to save her.
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-112.html

Don't forget about ME
Compilation of patient testimonials and columns about life with ME.
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-102.html

Broken life
Book about the politics behind ME, written by a journalist.
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-101.html

No, it's not written on my forehead
Book about the invisible illness ME.
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-94.html

Help, my body is taken hostage
Patient account of young adult life with ME and FM.
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-93.html

Wolf time (?)
Account of life with CFS, by a patient and her father/caregiver.
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-80.html

Tomorrow is another day
Humorous account of an ME patient.
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-75.html

I got sick, but the world turned out to be crazy
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-83.html

Happiness can not be captured in a sentence
Poetry about life with ME
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-79.html

The road towards acceptance
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-60.html

Declared uninhabitable
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-56.html
Beach chair in my kitchen
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-8.html

(both by same author)

Empty chairs
About a 17-year old who gets ME
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-53.html

I wanna sparkle, even if it's only for a moment
Patient talking about life with ME, cancer and polyarthritis
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-84.html

More than tired
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-4.html

Enough!
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-2.html
Too exhausted to die
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-17.html

(both by the same author)

Terrified heroes
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-6.html


Who knows tomorrow
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-20.html


Mommie is tired
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-29.html

After the party
http://www.me-gids.net/module-ME_CVS_docs-viewpub-tid-2-pid-47.html