Jonathan Edwards
"Gibberish"
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I have written to Gundersen but not had a reply. I am also hoping that Aftenposten will publish a brief response from me.
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I see this guy Gundersen has sent more than 3500 tweets. He's got quite a few followers, but for all that, has accrued the grand total of 48 likes.
He has given out 48 likes! Which gives you an indication of his temperament.
Well ... you are a pretty goofy-looking sheep after allOh, I see. Then Woolie felt silly...
Maybe a sheepish-looking goofy will help her restore the balanceWell ... you are a pretty goofy-looking sheep after all
Should Aftenposten choose to not publish your response, you can still share it as a comment to the article.I have written to Gundersen but not had a reply. I am also hoping that Aftenposten will publish a brief response from me.
I see this guy Gundersen has sent more than 3500 tweets. He's got quite a few followers, but for all that, has accrued the grand total of 48 likes.
I'm wondering whether that suggests perhaps he's not as influential as might appear? Perhaps one of these close-to-retirement figures that hasn't got much to say any more but likes to be in the limelight by making bold claims?
Should Aftenposten choose to not publish your response, you can still share it as a comment to the article.
Am looking forward to read it and appreciate your effort. He certainly won't listen to "mere" patients.
Check this out too if you haven't:
Journalist Jørgen Jelstad who wrote the book called De Bortgjemte (The Hidden) has written a reply to professor Gundersen at his own blog. I don't have the capacity to translate it, but here is a Google translation link: https://translate.google.com/translate?sl=no&tl=en&js=y&prev=_t&hl=no&ie=UTF-8&u=https://debortgjemte.com/2016/04/26/hva-om-pasientene-har-rett-kristian-gundersen/&edit-text=
Check this out too if you haven't:
Well, with the wiggle-room of translation, that seems to be almost exactly what we sent to Aftenposten! Except they asked us to be a bit shorter. But Jelstad has done a good job here - clear and well balanced. Nice blog.
The article includes an enormous amount of detail surrounding the PACE trial that i wouldn't have expected anyone to know, except for people like us and David Tuller who have followed events very closely; Including details that I've almost never seen mentioned elsewhere such as the PACE trial's "number needed to treat".
That sounds promising.The book managed to create quite a debate on ME. It was even recommended by the politician Erna Solberg at the Norwegian Parliament. She is now the prime minister of Norway.
The book was published at one of the largest publishing houses, and it is now in its 3. or 4. edition.
The controversy about PACE will surely continue for a while. But unlike Gundersen argues, the PACE controversy may soon end up being a positive story about patient engagement and research. About competent patients who are so much more than just patients. They are doctors, scientists, statisticians, teachers, plumbers, nurses, lawyers, architects, cleaners, professors, journalists ... they are you and me. They have been so unfortunate to be seriously ill. But they can still think and reason, think and have important knowledge. It turns PACE story that we should be happy.