Dear NJCFSA Member,
Imagine one day having a Center in New Jersey that will provide patient care, patient education and social services for patients with ME/CFS, Fibromyalgia, Gulf War Syndrome/Illness and Multiple chemical sensitivity. Also imagine that this center will promote clinical and scientific research into the etiology of, and therapeutic interventions for neuroendocrineimmune (NEI) disorders.
The goal to establish a NEI Center in New Jersey was initiated by P.A.N.D.O.R.A (Patient Alliance for Neuroendrocrineimmune Disorders Organization for Research and Advocacy), Lanford Foundation-Lifelyme, Inc. and NJCFSA board member, Dr. Kenneth Friedman. In 2009, they envisioned Assembly Resolution (AR) 202, which was sponsored by Assemblymen Chivukula, Conaway, Wagner and Angelini. Assembly Resolution 202 unanimously passed the New Jersey Assembly 78-0. A copy of the resolution can be downloaded on our website:
www.njcfsa.org.
Their next step is now upon us. They have envisioned a companion Senate Resolution, Senate Resolution 20, and found the legislative sponsorship of Senator Loretta Weinberg (D), Chair of the Senate Health Committee and Senator, Christopher Kip Bateman (R) , Senate Deputy Conference Leaders. The Resolution awaits passage in the New Jersey State Senate.
The NJCFSA is in total support of P.A.N.D.O.R.A and the Landord Foundation-Lifelyme, Inc. in their efforts to establish the NEI Center in New Jersey. To help them reach their goal, the NJCFSA is writing to our membership to ask you to please help by writing to Senators Weinberg and Bateman.
Please find enclosed a suggested letter requesting support of Senate Resolution 20 for the NeuroEndocrineImmune Center of New Jersey for your consideration. If you are unable to write your own letter, then consider using or modifying the sample letter enclosed. As the suggested letter indicates, it is time to accelerate both research and patient care for Chronic Fatigue Syndrome.
Thank-you.
Sincerely,
Margaret Walk
President, NJCFSA, Inc.
