NIH ME/CFS Telebriefing - 3/7/2018 (Wed.) at 3:00 pm (EST)

[Wally]

TRANS-NIH ME/CFS WORKING GROUP

Upcoming Events

• 
  
  • NIH ME/CFS Advocacy Call
    March 7, 2018 at 3pm ET
    Dial-in: 866-844-9416, Participant passcode: 4042892

See, https://www.nih.gov/mecfs/events (note - link copied from 2/22/2018 page update).
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E-mail received from NIH Listserv on 2/22/2018

“News from NIH: ME/CFS Telebriefing - March 7, 2018

“We request your participation in a telebriefing about updates on NIH’s efforts to advance research on ME/CFS. The telebriefing will be held on March 7, 2018, 3:00 until 4:00 pm ET. If you will be calling from the U.S., please use the following dial-in information for the telebriefing.

Dial-in: 866-844-9416

Participant passcode: 4042892

If you will be calling from another country, please see the attached chart for your country’s access information.

Please remember to register at NIHME-CFSWorkingG@ninds.nih.gov if you plan to participate in the call.

Thank you in advance for your participation and we look forward to an engaging, thoughtful and productive conversation.

Regards,

The Trans-NIH ME/CFS Working Group”

[Here is the link to subscribe to the listserv for the Trans-NIH ME/CFS Working Group - https://list.nih.gov/cgi-bin/wa.exe?SUBED1=NIH-MECFS_INFORMATION&A=1]

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(This is the chart (which I modified to be easier to read) that was included as a PDF attachment to the listserv e-mail.)

*COUNTRY
Toll Numbers
Freephone/Toll Free Number
(Restrictions may exist when accessing freephone/toll free numbers using a mobile telephone.)
Passcode: 4042892

ARGENTINA
0800-444-0891

AUSTRALIA: ADELAIDE
61-8-8121-5054
1-800-027-350

AUSTRALIA: BRISBANE
61-7-3102-2043
1-800-027-350

AUSTRALIA: CANBERRA
61-2-6100-0105
1-800-027-350

AUSTRALIA: MELBOURNE
61-3-9010-0854
1-800-027-350

AUSTRALIA: PERTH
61-8-9467-5282
1-800-027-350

AUSTRALIA: SYDNEY
61-2-8209-1531
1-800-027-350

AUSTRIA
43-1-92-81-450
0800-005-805

BELGIUM
32-2-400-9833
0800-3-8929

BRAZIL: RIO DE JANEIRO
55-21-40421433
0800-7610654

BRAZIL: SAO PAULO
55-11-3958-0778
0800-7610654

CANADA
866-845-8493

CHILE
1230-020-5986

CHINA: CHINA A
86-400-810-4796
10800-712-2423

CHINA: CHINA B
86-400-810-4796
10800-120-2423

COLOMBIA
01800-9-157005

CROATIA
080-08-06-410

CZECH REPUBLIC
420-2-25-98-56-26
800-700-241

DENMARK
45-7014-0294
8088-2739

EGYPT
0800000-9037

ESTONIA
800-011-1126

FINLAND
358-9-5424-7157
0-800-9-14619

FRANCE: LYON
33-4-26-03-51-62
080-510-2764

FRANCE: MARSEILLE
33-4-86-06-48-62
080-510-2764

FRANCE: PARIS
33-1-72-25-40-65
080-510-2764

GERMANY
49-69-2222-4866
0800-800-1420

GREECE
30-80-1-100-0647
00800-12-8034

HONG KONG
852-3001-3890
800-963-172

HUNGARY
36-1-700-8827
06-800-11152

INDONESIA
007-803-011-0169

IRELAND
353-1-506-0475
1800-936-202

ISRAEL
1-80-9212604

ITALY: MILAN
39-02-3604-6279
800-977-454

ITALY: ROME
39-06-8751-6068
800-977-454

ITALY: TORINO
39-011-510-0168
800-977-454

JAPAN: OSAKA
81-6-7878-2610
0066-33-812353

JAPAN: TOKYO
81-3-6868-2610
0066-33-812353

LATVIA
8000-3206

LUXEMBOURG
352-27-000-1392
8002-9169

MALAYSIA
1-800-81-4674

MEXICO: GUADALAJARA (JAL)
52-33-3208-7366
001-866-944-7658

MEXICO: MEXICO CITY
52-55-5062-9166
001-866-944-7658

MEXICO: MONTERREY
52-81-2482-0666
001-866-944-7658

NETHERLANDS
31-20-716-8075
0800-020-0350

NEW ZEALAND
64-9-970-4640
0800-456-285

NORWAY
47-21-590-067
800-10580

PANAMA
011-001-800-5072373

PERU
0800-53785

PHILIPPINES
63-2-858-3759
1800-111-42417

POLAND
00-800-1213477

PORTUGAL
351-2-10054708
8008-14925

ROMANIA
40-31-630-01-34

RUSSIA
8-10-8002-5624011

SAUDI ARABIA
800-8-110059

SINGAPORE
65-6883-9196
800-120-5221

SLOVAK REPUBLIC
421-2-322-422-78
0800-002074

SLOVENIA
0-800-81359

SOUTH AFRICA
080-09-82147

SOUTH KOREA
82-2-6744-1051
00798-14800-7786

SPAIN
34-91-414-21-71
800-300-906

SWEDEN
46-8-503-34-824
0200-899-945

SWITZERLAND
41-44-580-4320
0800-001-428

TAIWAN
886-2-2795-7345
00801-136-036

THAILAND
001-800-1206-66632

TURKEY
00-800-151-0810

UNITED ARAB EMIRATES
8000-35702387

UNITED KINGDOM: BIRMINGHAM
44-121-210-9182
0808-238-9816

UNITED KINGDOM: GLASGOW
44-141-202-0812
0808-238-9816

UNITED KINGDOM: LEEDS
44-113-301-0012
0808-238-9816

UNITED KINGDOM: LONDON
44-20-7950-1256
0808-238-9816

UNITED KINGDOM: MANCHESTER
44-161-601-0112
0808-238-9816

URUGUAY
000-413-598-3837

USA
1-203-369-5026
866-844-9416

VENEZUELA
0800-1-00-2884

VIETNAM
120-11746

 

[Wally]

I have sent the following e-mail to the NIH with questions I have about the public notifications they have published about this telebriefing, See a copy of my e-mail below. I will update this thread when I receive a response to these questions.

Questions re the NIH ME/CFS Listserv E-mail and the Public Announcement on the NIH’s Website for a ME/CFS Telebriefing on 3/7/2018

Trans-NIH ME/CFS Working Group,

I have several questions, which are set forth below, regarding the public information communicated via a 2/22/2018 NIH ME/CFS Listserv e-mail and information posted on 2/22/2018 on the NIH’s website page for its Trans-NIH ME/CFS Working Group event announcements.

My questions relate to the statement in the e-mail communication, quoted below, but not appearing on the NIH’s website for ME/CFS event announcements.

“Please remember to register at NIHME-CFSWorkingG@ninds.nih.gov if you plan to participate in the call.”

When clicking on this link it opens an e-mail link to mail an e-mail to the NIH. However, no instructions or other identifier(s) are included with this link.

Based on the instruction, quoted above, I have the following questions about the request for “registration” for this telebriefing.

1) What information is being requested to be sent in this e-mail?
2) When does this e-mail communication need to be sent/received by the NIH (i.e. deadline for sending the e-mail)?
3) Why is registration for this event being requested by the NIH’s listserv mailing, but not on the NIH website event notificication page?
4) Is registration required in order to have access to this telebriefing?

In addition to the questions set above, I was wondering why the PDF or the information in the PDF, which was included in the Listserv E-mail, does not appear on the NIH’s website page for ME/CFS Event Announcements. The PDF provides the call-in phone numbers for callers who are located outside of the U.S.

Thank you for your anticipated prompt response to my questions.

 

[Mary]

@Wally - I think I did this once before. In the e-mail I just gave my name and said I would be participating. I'm sure I referenced the name and date of the meeting in the subject line (ME/CFS Telebriefing March 7, 2018) I may have given my phone number, I can't remember. But it wasn't a big deal as I recall.

 

[Gemini]

Sent an e-mail to NIHME-CFSWorkingG@ninds.nih.gov asking to be registered for tomorrows Advocacy Call.

Included questions for Drs. Koroshetz & Nath re: discoveries in Cell [Feb 22, 2018] posted by @Wally on this thread:

http://forums.phoenixrising.me/inde...e-vulnerable-to-viral-brain-infections.57920/