Never Give Up
Collecting improvements, until there's a cure.
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Francis Collins and Walter Koroshetz have coauthored a blog post on the about ME/CFS.
https://directorsblog.nih.gov/2017/03/21/moving-toward-answers-in-mecfs/
They hit a lot of the right buttons.
They go on to detail what the NIH has been doing recently and what is coming up. They finish with this:
Sounds good to me!
https://directorsblog.nih.gov/2017/03/21/moving-toward-answers-in-mecfs/
They hit a lot of the right buttons.
Now imagine that you never get better— plagued by unrelenting fatigue not relieved by sleep. Any exertion just makes you worse. You are forced to leave your job or school and are unable to participate in any of your favorite activities; some days you can’t even get out of bed. The worst part is that your doctors don’t know what is wrong and nothing seems to help.
Unfortunately, this is not fiction, but reality for at least a million Americans—who suffer from a condition that carries the unwieldy name of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a perplexing disease that biomedical research desperately needs to unravel [1].
A number of studies suggest that abnormalities in cellular metabolism, a complex biological process that the body uses to create energy [3][4][5], may underlie ME/CFS...A number of other studies have suggested that changes in the immune system may play a causal role in ME/CFS [6][7][8], either due to a post-infectious autoimmune process or due to a unknown chronic infection.
They go on to detail what the NIH has been doing recently and what is coming up. They finish with this:
We recognize and empathize with the suffering experienced by people with ME/CFS and their frustration that so little is known and so little research has been done to find answers. We aim to change that. The NIH is committed to unraveling the underlying biologic cause(s) of ME/CFS as swiftly as possible, and promoting research that will inform the development of effective strategies for treatment and prevention of this devastating condition.
Sounds good to me!