After watching the very interesting You Tube video that @Countrygirl posted I wanted to post that I have been taking zinc, vitamin C daily, nicotinamide and occasional selenium for years but no great obvious benefit. I have checked my vitamin D level and it shouldn't be any higher than it is so I have that covered. I also take essential fatty acids and coenzyme q10 plus a few other supplements including several of the Bs but not methyl folate or methylcobalamin because I have both copies of the COMT enzyme which slows things down and can make one intolerant of too many methyl groups. My blood test shows a high level of folate and good level of B12.
Recently, after my first Pfizer vaccine I developed a horrible massive HISTAMINE reaction to something in my breakfast so have since added in Quercertin and found out the reaction happens whenever I have any type of gluten free product except oats so naturally I have stopped these. Nine days ago I added in NMN which stands for NICOTINAMIDE MONONUCLEOTIDE 150 mg which is half a capsule of the supplement I bought from eBay. I started to notice a difference in my energy from the second day which has continued until yesterday when I had a severe migraine caused by something else. (This is what I thought this morning but further research has thrown up a connection to nicotinamide raising both serotonin and HISTAMINE). See the next post.
I have noticed an ability to be able to stand and do jobs in the kitchen for almost double the time to what I would normally be able to do before POTS kicked in and last week my number of steps according to my Fitbit were considerable up, actually to just over 10,000 a day which is ridiculous for me. Normally at this time of the year it would be more like 8000 as long as I stayed virus free. I had no PEM even though on some days I knew I was pushing it but there were lots of gardening jobs I wanted to do.
I did end up with a respiratory virus which hung around for 4 days but only made me unwell for one. (I do of course realise I am extremely fortunate to be able to do what I do but often it isn't without out symptoms of severe IBS and migraines).
Its very early days but it is looking very promising. My sleep has also improved in its quality but not in the length of time I am asleep which is fairly short at around 6 1/2 hours a night. I also hadn't had a migraine for over a week until messing things up yesterday.
The thing that I threw me off was that I added in some DHEA having had a urine test which showed I was very low in this. I am steroid dependent so have to take a low dose of Prednisolone plus I have to take desiccated thyroid medication and a dash of oestrogen daily. The DHEA probably caused the stubborn migraine so it goes to show that for some of just sorting out our energy/immune system as the NAD+ theory goes won't be enough, we have to sort out our individual hormonal issues too for it to really work
Pam
Recently, after my first Pfizer vaccine I developed a horrible massive HISTAMINE reaction to something in my breakfast so have since added in Quercertin and found out the reaction happens whenever I have any type of gluten free product except oats so naturally I have stopped these. Nine days ago I added in NMN which stands for NICOTINAMIDE MONONUCLEOTIDE 150 mg which is half a capsule of the supplement I bought from eBay. I started to notice a difference in my energy from the second day which has continued until yesterday when I had a severe migraine caused by something else. (This is what I thought this morning but further research has thrown up a connection to nicotinamide raising both serotonin and HISTAMINE). See the next post.
I have noticed an ability to be able to stand and do jobs in the kitchen for almost double the time to what I would normally be able to do before POTS kicked in and last week my number of steps according to my Fitbit were considerable up, actually to just over 10,000 a day which is ridiculous for me. Normally at this time of the year it would be more like 8000 as long as I stayed virus free. I had no PEM even though on some days I knew I was pushing it but there were lots of gardening jobs I wanted to do.
I did end up with a respiratory virus which hung around for 4 days but only made me unwell for one. (I do of course realise I am extremely fortunate to be able to do what I do but often it isn't without out symptoms of severe IBS and migraines).
Its very early days but it is looking very promising. My sleep has also improved in its quality but not in the length of time I am asleep which is fairly short at around 6 1/2 hours a night. I also hadn't had a migraine for over a week until messing things up yesterday.
The thing that I threw me off was that I added in some DHEA having had a urine test which showed I was very low in this. I am steroid dependent so have to take a low dose of Prednisolone plus I have to take desiccated thyroid medication and a dash of oestrogen daily. The DHEA probably caused the stubborn migraine so it goes to show that for some of just sorting out our energy/immune system as the NAD+ theory goes won't be enough, we have to sort out our individual hormonal issues too for it to really work
Pam
