boolybooly
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Great news, thanks and well done to those who lobbied for this, please do continue and make sure this gets where it is going!
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And not long now til October and the Rituximab results keeping everything crossedHopefully the SMILE trial today will be a public relations disaster. Magic circles, kids being told to fake recovery? WTF.
Take the smile off EC face today. Sorry couldn't resistTeam PACE & Crawley will be fuming
Which we won't know about until they are published. Cyclo results should be out before then though.And not long now til October and the Rituximab results keeping everything crossed
Hopefully the SMILE trial today will be a public relations disaster. Magic circles, kids being told to fake recovery? WTF.
This contains a lot of excellent comments in support of a NICE update, and not only from ME groups. Most of them are very detailed, and cite support for their statements.
The comments of those opposed to an update are quite minimal and often completely blank. But those organizations may offer a good list of those who would most benefit from educational material and accurate scientific information:
British Infection Association:
Royal Liverpool University Hospital, CFS/ME services:
Royal College of Paediatrics and Child Health:
Association of British Neurologists:
Royal College of Psychiatrists:
University of Manchester - FINE Trial:
Royal College of Physicians:
Regional Public Health Agency for Northern Ireland:
Feedback on removal from the static list is a lot more jumbled. Some don't seem to understand what it entails, and some want it removed from the list so new psychobabble can be incorporated in the near future.
Which we won't know about until they are published. Cyclo results should be out before then though.
NoWill we not least find out if it was a success or not before it's published?
Starts at bottom of page 20 https://www.nice.org.uk/guidance/cg...er-consultation-comments-table-pdf-4602203536Has anyone found the stakeholder submission from BACME?
CS
The timing is very sweet. I have lovely images in my head of a mad last-minute panic over at the SMC as they try to figure out how to spin this, and slowly come to realise that they can't.Hopefully the SMILE trial today will be a public relations disaster.
This alone is a huge step forward, and it looks like there are a few other goodies in it too.I know this is just the start but I agree with @Valentijn if they dismiss the Oxford criteria it will hamstring the BPS crew from ever publishing such large quantities of garbage.
Only took them a mere 47 years (if you start the clock at McEvedy & Beard in 1970)
It's not research. But it's still relevant because it demonstrates the problem with reviewing the research inappropriately, and what the results of a review will be when the bullshit is excluded.I don't see the IOm report submitted as a prove.
what the results of a review will be when the bullshit is excluded.