dangermouse
Senior Member
- Messages
- 430
Hi everyone,
I've had ME for around 10 years. October 2015 I had pneumonia, shortly afterwards I was admitted to hospital with chest pain. After numerous tests and a clear Angiogram I was diagnosed with Microvascular Angina. As I have ME, and the usual medication for angina reduced my BP too much, I was prescribed Ranolazine which was the only drug that eased the pain.
I've been mostly housebound since getting pneumonia and recently when I've been taken out I have experienced the sensory overload symptoms, along with the usual orthostatic intolerance and hypoglycaemia symptoms, chest pain and shortness of breath.
I have post exertional malaise pretty bad after activities and even just a little low key socialising with very close family.
I try to do little bits of exercise but always end up worse for it at some point. I get pain in hips and low back especially and nearly always have it in my neck.
I'm a bit concerned to be honest. I've had relapses over the years and they've not lasted as long as this. I can't even go out on my own because of dizziness and spaced out sensations as well as the chest pain. I can't walk in a straight line, feel like I'm going to fall over sideways or faint.
I pace as well as I can. I switch activity. I rest. I meditate. I do gentle exercise if possible.
Has anyone else had similar experience or any insight into my current state of health. My GP told me that I have quite severe ME at this time and as I age it'll probably not get any better. I'm in my late forties.
Thanks.
I've had ME for around 10 years. October 2015 I had pneumonia, shortly afterwards I was admitted to hospital with chest pain. After numerous tests and a clear Angiogram I was diagnosed with Microvascular Angina. As I have ME, and the usual medication for angina reduced my BP too much, I was prescribed Ranolazine which was the only drug that eased the pain.
I've been mostly housebound since getting pneumonia and recently when I've been taken out I have experienced the sensory overload symptoms, along with the usual orthostatic intolerance and hypoglycaemia symptoms, chest pain and shortness of breath.
I have post exertional malaise pretty bad after activities and even just a little low key socialising with very close family.
I try to do little bits of exercise but always end up worse for it at some point. I get pain in hips and low back especially and nearly always have it in my neck.
I'm a bit concerned to be honest. I've had relapses over the years and they've not lasted as long as this. I can't even go out on my own because of dizziness and spaced out sensations as well as the chest pain. I can't walk in a straight line, feel like I'm going to fall over sideways or faint.
I pace as well as I can. I switch activity. I rest. I meditate. I do gentle exercise if possible.
Has anyone else had similar experience or any insight into my current state of health. My GP told me that I have quite severe ME at this time and as I age it'll probably not get any better. I'm in my late forties.
Thanks.