New WPI IHYD Fundraiser Videos, patient stories, ARV clinical trials!

LJS

LJS

Luke
Messages
213
Location
East Coast, USA
New WPI IHYD Fundraiser Videos, patient stories, ARV clinical trials

Note: Italic text under videos is from the you-tube video descriptions

Video 1: http://www.youtube.com/watch?v=kiUH17-gJak
[video=youtube;kiUH17-gJak]http://www.youtube.com/watch?v=kiUH17-gJak[/video]
A brief introduction to the Whittemore Peterson Institute, followed by the story of Rebecca Ghusn, who has been ill with ME/CFS for almost five years.



Video 2: http://www.youtube.com/watch?v=lRygh3QtmHU
[video=youtube;lRygh3QtmHU]http://www.youtube.com/watch?v=lRygh3QtmHU[/video]
Jamie Deckoff-Jones discusses the effect of Whittemore Peterson Institute research on the lives of her and her daughter. Chris and Hugh Hempel talk about their daughters, Addi and Cassi, and their struggle with Niemann-Pick Type C.
Note: Dr. Jamie Deckoff-Jones is the author of the X Rx blog, her and her daughter are treating there XMRV infection with the HIV HAART protocol



Video 3: http://www.youtube.com/watch?v=uM8Hs1nuk5I
[video=youtube;uM8Hs1nuk5I]http://www.youtube.com/watch?v=uM8Hs1nuk5I[/video]
Ralph Toddre presents the story of his daughter Allison, who suffers from an autism spectrum disorder, and talks about how the Whittemore Peterson Institute has helped his family. The video concludes with an overview of WPI's goals.


I find the last video the most interesting in the implications; it seems to confirm that the WPI has already started clinical trials with good results, we heard in an interview sometime ago a few weeks ago with Annette Whittemore that they have some data from a small clinical trial.
 
D

Deatheye

Senior Member
Messages
161
Seems like the WPI is really pushing this o_O
I just hope they are not going too far and hurting themselfs.
Was there any information about WPI allready threating ilnesses before? Seems like a big jump for medicine if that's all curable soon and has a known cause. I'm kinda starting to feel like am seeing history beeing made :D
 
pamb

pamb

Senior Member
Messages
168
Location
Edmonton, AB, Canada
thank you so much for sharing uplifting news. This wait is so hard and certainly hope makes it seem much more possible to keep hanging on.
 
N

Navid

Senior Member
Messages
564
videos

the stories told in the videos are great...altho only dr. deckhoff and her daughter appear to have cfid's/me. the other little girl who they say has cfid's/me has symptoms that are very different from most cfid's patients i know and read abt....she has an underactive immune system while most of us have an overactive system.

....the videos do not feel modern/dynamic/catchy or up to date...sorry to be critical, but to get attention in this fast paced, media driven world, the videos should have a more modern feel. nobody asked but, i gave my 2cents : )


ooops music is from recovered me patient....now i feel bad, so i edited out my crit.
 
LJS

LJS

Luke
Messages
213
Location
East Coast, USA
shebacat said:
I also thought the actual voice in the voice over gave the videos a very old fashion feel and the music was way too melodramatic....the stories and videography were great; VO and music not so good....the videos do not feel modern/dynamic/catchy or up to date...sorry to be critical, but to get attention in this fast paced, media driven world, the videos should have a more modern feel. nobody asked but, i gave my 2cents : )
Click to expand...

I totally agree on the music, over sensationalized, it bothered me too. So that makes two of us.
 
ukxmrv

ukxmrv

Senior Member
Messages
4,413
Location
London
I thought the videos were wonderful - music and all. Different tastes - hope that it appeals to people who give money.
 
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