but even 100s is still giving me some hope, because the chances for recovery with HIV or other bad diseases seam to be much worse. so there is at least a chance.
In terms of maintaining hope: one thing to consider is that when a treatment has shown efficacy for ME/CFS, it tends to only work for a small percentage of patients. For example, Dr Chia has said LDN helps only about 10% to 20% of ME/CFS patients (but for those it helps, he says it does so very significantly).
And anecdotally, on this forum, oxymatrine for enterovirus ME/CFS only provides major benefits for a similarly small percentage (Dr Chia reckons oxymatrine makes major improvements for 30%, but experience on these forums suggests around 10% is more accurate figure).
So across the board of the many ME/CFS treatments available, they all tend to only work for a small subset of patients.
What this mean? It means that in order to have a reasonable chance of finding a treatment which works for them, patients would need to try lots of different treatments, until they hit the jackpot.
Thus you could argue that the reason we do not see more major improvement stories posted on PR is because many ME/CFS patients do not have the energy, motivation, clarity of mind or the finances to try out the dozens and dozens of the various treatments that other patients have benefitted from, or which ME/CFS doctors often prescribe.
Also, some patients can be very ill and/or very sensitive to meds, and thus may experience intolerable side effects from treatments, so they may not be able to try the treatments they would like to test (this is my case).
But if more patients were to try out some of the more promising treatments available, then perhaps we would see more success stories posted.
In order for ME/CFS patients to maintain hope, it is reasonable to assume that there may be a treatment out there which will work really well for them. It's just a case of trying to discover which treatment that is.