Tom Kindlon
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Results for Graded Exercise Therapy (GET) in Action for ME's 2014 survey report, "Time to Deliver":
23% of the sample reported having tried it. The total sample size for the survey was 2018 so I presume it's 23% of that which gives an approximate sample size of 464.
"Time to deliver" http://www.actionforme.org.uk/Resources/Action for ME/Documents/get-involved/me-time-to-deliver.pdf
The document comments:
My comment:
Page 16 doesn't give any quantitative data on it.
Unless they have data to show this, they shouldn't say the bit I have marked with asterisks.
Their own survey in 2008 found that 31.27% of those who had done GET under an NHS specialist had been made worse with it. This was not statistically different from the overall percentage (31.92% were made worse by GET). The "other" category which would include self-prescribed GET actually had a marginally lower rate of people saying it made them worse (28.93%). (see slide 9 at: http://afme.wordpress.com/5-treatments-and-symptoms/)
When I posted the results on Twitter, some people said that the results categories were overly broad.
Here are the more nuanced results of a survey the ME Association reported on in 2010
23% of the sample reported having tried it. The total sample size for the survey was 2018 so I presume it's 23% of that which gives an approximate sample size of 464.
A little or very helpful: 35%
No change: 18%
Made a bit or much worse: 45%
"Time to deliver" http://www.actionforme.org.uk/Resources/Action for ME/Documents/get-involved/me-time-to-deliver.pdf
The document comments:
"Patients also reported, overall, finding GET less helpful than in 2008 (45% then compared to 35% now). This may be because people with M.E./CFS are self-prescribing GET, rather than working with a specialist therapist (see p 16). We continue to hear positive and negative experiences of GET from people with M.E./CFS and recognise that further investigation is needed to find why it may benefit some people and not others."
My comment:
Page 16 doesn't give any quantitative data on it.
Unless they have data to show this, they shouldn't say the bit I have marked with asterisks.
Their own survey in 2008 found that 31.27% of those who had done GET under an NHS specialist had been made worse with it. This was not statistically different from the overall percentage (31.92% were made worse by GET). The "other" category which would include self-prescribed GET actually had a marginally lower rate of people saying it made them worse (28.93%). (see slide 9 at: http://afme.wordpress.com/5-treatments-and-symptoms/)
When I posted the results on Twitter, some people said that the results categories were overly broad.
Here are the more nuanced results of a survey the ME Association reported on in 2010
(n=906)
Graded Exercise Therapy
Greatly improved: 3.4%
Improved: 18.7%
No change: 21.4%
Somewhat worse: 23.4%
A lot worse: 33.1%