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Results for Graded Exercise Therapy (GET) in Action for ME's 2014 survey report, "Time to Deliver":
23% of the sample reported having tried it. The total sample size for the survey was 2018 so I presume it's 23% of that which gives an approximate sample size of 464.
"Time to deliver" http://www.actionforme.org.uk/Resources/Action for ME/Documents/get-involved/me-time-to-deliver.pdf
The document comments:
My comment:
Page 16 doesn't give any quantitative data on it.
Unless they have data to show this, they shouldn't say the bit I have marked with asterisks.
Their own survey in 2008 found that 31.27% of those who had done GET under an NHS specialist had been made worse with it. This was not statistically different from the overall percentage (31.92% were made worse by GET). The "other" category which would include self-prescribed GET actually had a marginally lower rate of people saying it made them worse (28.93%). (see slide 9 at: http://afme.wordpress.com/5-treatments-and-symptoms/)
When I posted the results on Twitter, some people said that the results categories were overly broad.
Here are the more nuanced results of a survey the ME Association reported on in 2010
23% of the sample reported having tried it. The total sample size for the survey was 2018 so I presume it's 23% of that which gives an approximate sample size of 464.
A little or very helpful: 35%
No change: 18%
Made a bit or much worse: 45%
No change: 18%
Made a bit or much worse: 45%
The document comments:
"Patients also reported, overall, finding GET less helpful than in 2008 (45% then compared to 35% now). This may be because people with M.E./CFS are self-prescribing GET, rather than working with a specialist therapist (see p 16). We continue to hear positive and negative experiences of GET from people with M.E./CFS and recognise that further investigation is needed to find why it may benefit some people and not others."
Page 16 doesn't give any quantitative data on it.
Unless they have data to show this, they shouldn't say the bit I have marked with asterisks.
Their own survey in 2008 found that 31.27% of those who had done GET under an NHS specialist had been made worse with it. This was not statistically different from the overall percentage (31.92% were made worse by GET). The "other" category which would include self-prescribed GET actually had a marginally lower rate of people saying it made them worse (28.93%). (see slide 9 at: http://afme.wordpress.com/5-treatments-and-symptoms/)
When I posted the results on Twitter, some people said that the results categories were overly broad.
Here are the more nuanced results of a survey the ME Association reported on in 2010
(n=906)
Graded Exercise Therapy
Greatly improved: 3.4%
Improved: 18.7%
No change: 21.4%
Somewhat worse: 23.4%
A lot worse: 33.1%
Graded Exercise Therapy
Greatly improved: 3.4%
Improved: 18.7%
No change: 21.4%
Somewhat worse: 23.4%
A lot worse: 33.1%