heapsreal
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- Messages
- 10,104
- Location
- australia (brisbane)
My doctor who i have had for a few years now has retired. Caught me by suprise as he did retire early.
Now im back with a doctor who my wife sees and who i saw in my early days of cfs and i moved on because he was useless then.
He's prescribing me the meds i need but isnt comfortable with antivirals. Still doesnt believe they help me with my cfs. My last visit said i should try and cut back on my famvir from 500mg twice a day to 500mg once a day and eventually try and stop them. I said to him i went up to that dose as lower doses werent helping. He's trying to be polite but basically said he doesnt think cfs and or the shingles rash that flares up with headaches etc has anything to do with an active virus and that its just neuralgia. I told him it doesnt take long if i stop avs for things to go bad but i said i will try it once a day. I was thinking that dr lerner has written that several years on avs and the virus can burn itself out, so it was a thought i had?? 9 yrs now on famvir, looks like its a forever med for me.
So 3 days now on 500mg once a day of famvir. Last 2 days off work as insomnia has been bad. Basically sit up until 5am to call in sick then load up on more drugs to sleep which is from 6am to 10am. I have been taking sleep meds at night but of no help. My body clock has gone bonkers. Today ive been feeling fogged out of my skull. Doesnt feel shingles related yet but reminds me of cmv being active. All this in 3 days on a lower dose.
So ive just gone back to my normal dose. These drs?? You just know he's going to say its a coincidence that i feel shit on lower dose of famvir. I even gave him copies of my nk function study i was in, im sure he hasnt read it yet. I hate dealing with clueless drs. Hopefully ive got this reactivation early and hit it hard.
Ive looked online to see the price of famvir and self treat but the cost of famvir and another med i use are costly and much cheaper getting it on prescription, if he continues too, that is.
Changing doctors after you have found a good one can be up their on our list of things that frighten us and frustrate us. Especially since ive been managing it ok with only minor hiccups every so often the last couple of years.
This shit never ends, the depth just varies.
Cheers
Now im back with a doctor who my wife sees and who i saw in my early days of cfs and i moved on because he was useless then.
He's prescribing me the meds i need but isnt comfortable with antivirals. Still doesnt believe they help me with my cfs. My last visit said i should try and cut back on my famvir from 500mg twice a day to 500mg once a day and eventually try and stop them. I said to him i went up to that dose as lower doses werent helping. He's trying to be polite but basically said he doesnt think cfs and or the shingles rash that flares up with headaches etc has anything to do with an active virus and that its just neuralgia. I told him it doesnt take long if i stop avs for things to go bad but i said i will try it once a day. I was thinking that dr lerner has written that several years on avs and the virus can burn itself out, so it was a thought i had?? 9 yrs now on famvir, looks like its a forever med for me.
So 3 days now on 500mg once a day of famvir. Last 2 days off work as insomnia has been bad. Basically sit up until 5am to call in sick then load up on more drugs to sleep which is from 6am to 10am. I have been taking sleep meds at night but of no help. My body clock has gone bonkers. Today ive been feeling fogged out of my skull. Doesnt feel shingles related yet but reminds me of cmv being active. All this in 3 days on a lower dose.
So ive just gone back to my normal dose. These drs?? You just know he's going to say its a coincidence that i feel shit on lower dose of famvir. I even gave him copies of my nk function study i was in, im sure he hasnt read it yet. I hate dealing with clueless drs. Hopefully ive got this reactivation early and hit it hard.
Ive looked online to see the price of famvir and self treat but the cost of famvir and another med i use are costly and much cheaper getting it on prescription, if he continues too, that is.
Changing doctors after you have found a good one can be up their on our list of things that frighten us and frustrate us. Especially since ive been managing it ok with only minor hiccups every so often the last couple of years.
This shit never ends, the depth just varies.
Cheers