Martin aka paused||M.E.
Senior Member
- Messages
- 2,291
Hi peeps,
I have created a new Discord Group “Solve ME/CFS”
This Discord group differs from others in terms of the classification of the individual channels and the overall approach: While other groups are divided according to active ingredients, the focus here should be on the individual members.
That means: everyone introduces himself with a short medical history AND known laboratory values.
Then in each channel it should only be about which active ingredients helped and which did not.
The idea behind it corresponds to my understanding of ME / CFS: I don't believe in a uniform pathogenesis, but in a diversity of subgroups.
In this respect, I think it is more productive if everyone can read their way through the channels and - ideally - determine their personal subgroup. Then he can try the active ingredients successfully used by this member himself/herself and indicate success or failure as a response with a “thumbs up” or “thumbs down”.
Of course, he*she should also mention his successes and failures in his*her own channel.
IMPORTANT: ONLY users who were and are willing to try active ingredients are welcome in this group. We're not talking about whey, niacin, and similar supplements since there are enough resources about these out there. You are surely welcome to do that in the other Discord groups. Only drugs, peptides and the like apply here.
Furthermore, I expect each individual to treat one another with respect. There are no dumb questions. Not everyone is physically or intellectually capable of fully understanding biochemical and medical relationships. We only win when we all support one another.
Anyone who disregards this will be thrown out without warning. This also applies to experienced usera.
Your Martin a.k.a. paused_me
Ps.: If you are interested please send me a DM
I have created a new Discord Group “Solve ME/CFS”
This Discord group differs from others in terms of the classification of the individual channels and the overall approach: While other groups are divided according to active ingredients, the focus here should be on the individual members.
That means: everyone introduces himself with a short medical history AND known laboratory values.
Then in each channel it should only be about which active ingredients helped and which did not.
The idea behind it corresponds to my understanding of ME / CFS: I don't believe in a uniform pathogenesis, but in a diversity of subgroups.
In this respect, I think it is more productive if everyone can read their way through the channels and - ideally - determine their personal subgroup. Then he can try the active ingredients successfully used by this member himself/herself and indicate success or failure as a response with a “thumbs up” or “thumbs down”.
Of course, he*she should also mention his successes and failures in his*her own channel.
IMPORTANT: ONLY users who were and are willing to try active ingredients are welcome in this group. We're not talking about whey, niacin, and similar supplements since there are enough resources about these out there. You are surely welcome to do that in the other Discord groups. Only drugs, peptides and the like apply here.
Furthermore, I expect each individual to treat one another with respect. There are no dumb questions. Not everyone is physically or intellectually capable of fully understanding biochemical and medical relationships. We only win when we all support one another.
Anyone who disregards this will be thrown out without warning. This also applies to experienced usera.
Your Martin a.k.a. paused_me
Ps.: If you are interested please send me a DM
