New Book: Understanding ME/CFS & Strategies for Healing

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Hello everyone

I wanted to let you know about the publication of my new book: ‘Understanding ME/CFS & Strategies for Healing’.

My book has a foreword written by Prof. Klaus Wirth in which he describes his methodology in thinking about ME/CFS and the development of his potential ‘Mitodicure’ pill. Prof. Wirth also read over the first two chapters (about Wirth and Scheibenbogen research) to ensure they were accurate.

My book is trying:

  • To communicate in an accessible way for other patients what I think is the most compelling strand of recent ME/CFS research, the work of Prof. Klaus Wirth & Prof. Carmen Scheibenbogen. They have worked on a ‘unifying model’ of ME/CFS which tries to ‘join up the dots’ of the most important previous research findings and explain their inter-relationship (as well as of course making their own breakthrough findings).
  • To raise awareness of Prof Wirth’s potential ME/CFS pill, ‘Mitodicure’, which aims to target the main mechanisms of PEM.
  • To share other key research as well as a range of treatment strategies that I have tried to improve my own quality of life. I used to be mainly housebound for years, with plenty of lengthy bed-ridden stretches. I still have ME/CFS but I can once again lead an independent - if limited and often difficult - life.

In addition to discussing the Wirth and Scheibenbogen research in the first three chapters, some of the other topics covered in the book include

  • Microclots and my trip to Germany for HELP apheresis
  • Why CO2 levels lower in ME/CFS and my experience with the Buteyko method for increasing them and improving blood perfusion/circulation
  • Why ME/CFS might cause excessive thirst, how I landed in hospital with severe, life-threatening hyponatremia from this problem and was diagnosed as a mentally ill ‘psychogenic water drinker’, how I resolved the thirst and why I think the condition called ‘psychogenic water drinking’ is a disastrous Freudian mistake
  • Unusual adrenal and thyroid issues in ME/CFS, including my (ultimately negative) experience of taking T3 monotherapy
  • Adapting ancestral dieting to ME/CFS, including my positive experience with carnivory
  • Discussion of spinal problems and my experience with osteopathy/Perrin technique
  • Discussion of the major mistakes I believe are made in the ‘typical ME/CFS brain retraining narrative’ while also talking in a speculative way about how - if neuroplasticity specialists and ME/CFS experts could consider this area from a more scientific perspective - future neuroplasticity interventions based on solid science might be able to help improve some problems within the ME/CFS brain
  • A chapter on how to find hope and meaning when you have ME/CFS
I hope that people find it of interest.

It is available on Amazon in e-book, paperback and audiobook:

It is also available from other online retailers, follow this link.

It should also be possible to order it from your local bookshop.
 

Rufous McKinney

Senior Member
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13,648
I hope that people find it of interest.
well, every topic you've listed there sounds really interesting.

May I make an odd comment? I've been saying for a number of years now: the Germans will figure this out.

That is an intuitive "feeling" I have had for quite some time, whenever I look into what's going on my sense is this is a route that leads somewhere positive for us.

And here is your book!
 

Rufous McKinney

Senior Member
Messages
13,648
It took me a year to write the book (and it ended up being 2 and a half times longer than I thought when I started, God help me! But I got over the finish line eventually :))
Must feel so great to have gotten to this point! You must have had some help and enjoy feeling good about this major accomplishment.
 
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