Jody, this may be your best article yet on EmpowHer. It reads like a poem and portrays the reality of post-exertional malaise better than I've read anywhere else. You sure have a talent for sprinkling in just the right words, without overdoing it. I'm wondering if you have the same talents with your cooking. Just enough salt to make it taste good.
I have never been so aware as I have been these past few weeks, that the theories don't do anything for us. Not for me, at least, and sounds like, not for you either.
At best, they bring up new ideas of things to try from time to time. But at worst, they scare the pants off me, and leave me confused and exhausted from my thoughts going 'round and 'round and leaving me no further ahead.
At the end of it I still end up doing what I've been doing -- taking the things I've learned help me and trying to avoid the things that don't.
I'm glad theories help research. But till that research has been cooked and set and is ready to eat ... well, I'd just as soon wait till things get to that stage before I try to digest any more of it.
Thanks for that.
I think your mention of cooking, flavoured my reply to Lisa.
And ... ahem, yes, I am a pretty fair cook, if I do say so myself. (And I do say so myself ... I don't know if I can get anyone else to say it for me. )
You validated what I've been trying to explain to people for so long. I really don't always know when I've crossed the limit until it's too late. And then you really don't know how long you'll be down or how far down.
My last crash snuck up on me because of some meds I was taking. When a nurse took my temperature and it was elevated, the tears started streaming down my face and I realized that I was sick again and I stopped and went back to bed. About 10 days later and I'm starting to come back to life.
Sometimes it hits like a hammer and sometimes it sneaks in like plastic wrap. I tend to ignore the plastic wrap one until it's too late.
Thanks for another great article. I'm enjoying them immensely.
It does help to hear from other people that they are running into the same things. Helps with the sneaky voices in our thoughts that wonder if it's just ... us? Maybe we're just inadequate or ... weak ... stupid ... lazy ... fill in the blank with your own personal demons.
It helps to hear from someone else that, yes, this illness IS the hell on earth we think it is. It really IS this hard and this tricky to live with it, and live in spite of it.
And that it sucks to have SO much down time, and it REALLY sucks the way the downtime can sneak up on us and catch us so frequently ....
I am sorry to hear you got snuck up on and brought down again. Glad to hear you are feeling a little better again.