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NEED HELP , ANYBODY FROM FRANCE?
Hello everyone. I am 38, female and currently living in Germany. I ve been suffering from ME, Mast cell activation syndrome, Small Fiber Polineuropathy , severe chemical sensitivity ( I would rather call it INTOLERANCE, not allergy!!! ), Hashimotos, Hypophysis insufficiency, for 15 years. Now struggling with the consequences of covid ( I had it in March but I got Paxlovir and antibodies, this save me, I will open a post for this )Last week my father unexpectly died.Days before he died he asked me to contact a niece who is living in France explaining to her why he couldnt see her ( my mother isolated him and when he lost his ability to walk he couldnt contact her because she was controlling his phone ) and to tell her that he is sick and abandoned but he loves her and thinks about her.I was so happy when I contacted her- she inmediately visited him and she could hold his hand and comfort him. Suddenly he died and I was devastated. I cried for 15 hours and I bought the first plane I found to go and give him the last kiss and hug
. I had to take taxis and already at the beginning of my trip I was experiencing PEM.You all know how adrenaline can give us a booster and we can do things but after that we pay an expensive bill with a crash. I managed to see him and be with him at the funeral home, I took an hotel and the next day I flight back Germany. I landed in Germany with tremors, shaking,pain etc , and I am still in crash.My cousin asked me if I am ok and I am having lots of anxiety because I dont know how to explain her that yes, I could flight and I could see my Dad, but now I am paying for it, because I have ME/ CFS.I dont want her to think I am a pretender and I fake illness.I would be so thankful if people from France here could give me the best information and links about ME ( please not “ fatigue syndrome” )in french to tell her the best way possible what I suffer from and that she understands.She seems to be a real nice person and I would like to keep in touch with her and be friends
Hello everyone. I am 38, female and currently living in Germany. I ve been suffering from ME, Mast cell activation syndrome, Small Fiber Polineuropathy , severe chemical sensitivity ( I would rather call it INTOLERANCE, not allergy!!! ), Hashimotos, Hypophysis insufficiency, for 15 years. Now struggling with the consequences of covid ( I had it in March but I got Paxlovir and antibodies, this save me, I will open a post for this )Last week my father unexpectly died.Days before he died he asked me to contact a niece who is living in France explaining to her why he couldnt see her ( my mother isolated him and when he lost his ability to walk he couldnt contact her because she was controlling his phone ) and to tell her that he is sick and abandoned but he loves her and thinks about her.I was so happy when I contacted her- she inmediately visited him and she could hold his hand and comfort him. Suddenly he died and I was devastated. I cried for 15 hours and I bought the first plane I found to go and give him the last kiss and hug
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