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In January, I'm traveling 10 hours by car to go to Ithaca College for a CPET and then to NYC for additional testing and an appointment with my specialist. My partner is driving.
I am concerned about the amount of time in a car on PEM, orthostatic intolerance, and fatigue. I had hoped to be able to lie flat in back of a van/SUV, but google searches indicate that isn't safe. I usually have 2-4 hours of upright activity a day.
I realize some people in our community may not be able to travel at all or require ambulance transport. For those who are able to find a way to travel, I welcome any advice you may have. Thank you!
I am concerned about the amount of time in a car on PEM, orthostatic intolerance, and fatigue. I had hoped to be able to lie flat in back of a van/SUV, but google searches indicate that isn't safe. I usually have 2-4 hours of upright activity a day.
I realize some people in our community may not be able to travel at all or require ambulance transport. For those who are able to find a way to travel, I welcome any advice you may have. Thank you!