Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I am a patient of Dr. Klimas, if she is charging these fees its not for profit, I can assure you. She has a waiting list of 400! I think she got furstrated and is going this route. Until CFS becomes a mainstream illness, that regular Docs can treat, this is a lifesaver for suffering people. Cheney charges $500 an hour. I know her, her heart is in the right place. Simplify the flow of the practice ie: no insurance, and let her get off the ground. Im sure she will find a way at some point to help us who have exhausted our life savings...thank you Dr. Cheney...lol
Klimas is a great physician, (she is mine)just isnt accessable due to her obligations to UM. I always see an intern prior to seeing her, they get all of the mundane info and she spends a long time with me, trying her best to tweek symptom control. Now, since XMRV she may change her protocal. I see her Dec 3rd and will share any new treatment tests.etc.
I see Dr. Derek Enlander in New York and he accepts my medicare and many other insurances. He is DEFINITELY not doing this for the money. His care is excellent. What would Dr. Klimas' clinic do for me that Dr. Enlander cannot do?
I am so very disappointed with the name Chronic Fatigue Center. Can we petition her to change it before her grand opening?