From what I hear she is very objective, basically egoless and from the very few times I've bumped into her in conferences - has a great sense of humor. She really is about the patients and she does an enormous amount of work.
What struck me was Nancy saying that unlike all the other supposed causes, in the past, EBV and other things, were also found in high numbers in the public (controls), and this virus has, so far, now reached 98% positivity rate in CFIDS patients, but only 3.7% in controls.
She's been such a key figure in so many ways; research, advocacy, education... She's held just about every possible position; IACFS/ME president, CFSAC member, Fair Name Campaign board member - probably many other things. She's always trying to push the boundaries and she's very open to new ideas.
What really struck me about what she said was that this is the first virus to be found at high levels in chronic fatigue syndrome patients that is rare in the outside population..
Indeed, that seems to be the take-home message. When people state, "well, I've been around a long time and they've made special claims for the roles of viruses in the past (EBV, HHV-6) to naught," they need to get a grasp on this new information. CFS patients HAVE this; healthy people DO NOT. Healthy people HAVE EBV antibodies; healthy people HAVE HHV-6 antibodies (they had roseola as kids). They do NOT have XMRV antibodies.
That's why the new name XAND is appropriate today. We do not know the exact nature of the association (though the world's new expert, Mikovits, believes it's a causal one) but there darn sure is one.