I am always careful to say that I improved from 30% to 80% during the year or so when I was following Dr Myhill's advice (via her website and through a doctor associated with her). After a decade of no progress whatsoever, during that year I improved enormously - but I can't conclude for certain which treatments, which supplements, which lifestyle changes were responsible. Maybe only 2 or 3 of the many things I was doing were significant. But near enough everything I did during that year came from Dr Myhill's recommendations, one way or the other, and near enough everything seemed to make a positive difference that I could feel and measure directly.
The Biolab tests all made perfect sense too, they correlated well with my own observations, and the scientific detail all checked out when I looked it up on Wikipedia.
It was a slow and gradual process, it cost quite a bit of money and an investment of time and effort as well (although nothing was overpriced, quite the reverse) but it was a major turnaround.
There is a huge overlap between this 'protocol' and the recommendations of many other CFS physicians, as others have observed here. I wouldn't describe my treatment as a 'protocol' actually, as the whole regime was quite tailored to my own tested vitamin deficiencies and sensitivities, but many of the themes are clearly the same for all patients. I still need to continue with many of the recommendations, and when I experiment with relaxing the regime - hoping to save myself some of the ongoing maintenance effort - I noticeably deteriorate quite fast.
So in summary I would recommend Dr Myhill and her website, without hesitation, to any UK ME/CFS patient. Like any other protocol or physician, I don't think her recommendations are perfect - I suspect some of the measures I took may have been unnecessary or of marginal significance - but I think Dr Myhill is the best option we have in the UK.
The one thing my treatment did not emphasise as much as it could have done was the significance of identifying dietary sensitivities. I made further progress a year or two later with the help of Allergy UK's dietary sensitivity testing, identifying the limited diet which I follow now, which brought a further significant improvement. I also got some benefit from Shiatsu, which enabled me to "exercise without exercising" (the practitioner does the work for you) and that got my body moving again. (I still avoid any unnecessary physical activity and try to avoid stress). And I am still left with all the sensitivities and restrictions that we identified during testing - but after sustained abstinence, my tolerance thresholds are much higher; I don't get aches and pains from picking up glossy magazines any more.
So there are a lot of things I have done which have all helped a little, and I have found them all to be necessary to get the improvements I have got, and none of them have "cured" me but they have all made a big, positive, sustained difference. I will be returning to the physician associated with Dr Myhill for further advice at some point in the next year to see if I can make further progress.
I repeat that I believe Dr Myhill is the best option we have for ME/CFS/MCS in the UK, and I await with great interest to see whether the GMC will discipline her tomorrow for having the temerity to actually treat patients who the NHS refuses to care for. Whatever they may do to her, she will remain a true Doctor in my eyes, which is more than I can say for some of the overpaid and profoundly ignorant drug-dealers I have encountered within the NHS. I only wish more ME/CFS patients had the financial resources and the confidence to escape from the clutches of the NHS, which on the whole (and there are some rare exceptions, some good GPs who do try hard to inform themselves) does them nothing but harm.
