Mycoplasmas - Stealth Pathogens

[stridor]

Had a similar experience to you 10 years ago. I tested positive for EBV, HSV-1. Got prescribed Valtrex which didn’t help, so I gave them up after 3 months

Every-time I went in to run some blood tests, which I did almost weekly at one point, the numbers were sky rocketing. I had HVS-1 since I was a baby and never had an issue, and got EBV awhile before coming down with ME/CFS, so it didn’t make any sense why my body wasn’t able to keep them in check

Eventually they found a bacterial infection in my system and I was on antibiotics for only 2 weeks, the infection was cleared, and somehow my immune system was strong enough to also fight off the re activated EBV and HVS-1 and my numbers was back to normal again. And all my symptoms went away, such as PEM. I was ME/CFS free for around 5 years until new infection came along (both viral and bacterial)

That was an old post. The show goes on.
March 2023, after a cold, I developed eosinophilic asthma (it is uncommon and usually severe). Testing showed that both the mycoplasma and HHV-6 were back. Three weeks of minocycline had the symptoms of asthma 90% improved.

But all symptoms returned after. Since then, Drs only want to give me prednisone. I see a specialist in Feb and hopefully she will listen to me.

Along with minocycline I took a course of anti-fungal which brought back CFS. I used methylene blue and red light therapy to reverse it and maintain on red light therapy only.

 

[Annavive]

That was an old post. The show goes on.
March 2023, after a cold, I developed eosinophilic asthma (it is uncommon and usually severe). Testing showed that both the mycoplasma and HHV-6 were back. Three weeks of minocycline had the symptoms of asthma 90% improved.

But all symptoms returned after. Since then, Drs only want to give me prednisone. I see a specialist in Feb and hopefully she will listen to me.

Along with minocycline I took a course of anti-fungal which brought back CFS. I used methylene blue and red light therapy to reverse it and maintain on red light therapy only.

I’m really sorry to hear that you relapsed again after new infections. From what I read; ME/CFS will in most cases cause relapses for the rest of one’s life based of anecdotal experiences of those living with ME/CFS

I suspect this is due to new infections hijacking the immune system again causing all types of viruses or other things to flare up. Both of our stories seem to make sense, in regards to this theory

I also had some antibiotic treatments again for 2 weeks (doxy), just this year without finding out the underlying infection(s). Just hoping for some improvement. I improved from severe to mild which is a huge win. However, I still have PEM and some flu like symptoms alongside the other usual ME symptoms. I’m now also being refused further treatment and my doctors tell me it’s probably autoimmune even though I have a negative ANA, and no evidence for autoimmunity.

I really hope you will find a doctor willing to test and try out antibiotics due to how well you have responded to that in the past. I hope you get some relief, and thank you for your answers

 

[Wishful]

And all my symptoms went away, such as PEM. I was ME/CFS free for around 5 years until new infection came along (both viral and bacterial)

Interesting. I see that as ME being a state that can be triggered by an infection, but isn't directly caused by the infection. Some of us stay locked into that ME state, while others can break out of it, at least until a new infection triggers it again.

 

[stridor]

@Annavive
I like your take on things. My energy and recovery are diminished a bit, but I wouldn't meet the criteria for CFS. right now. Which is a good thing because I have my hands full with this asthma.

Methylene blue and the helmet took away the brain fog earlier this year. It had been with me since 2011. And now the helmet is keeping it away on its own.

I used hydrogen peroxide and doxy in 2015. They treated the mycoplasma and the HHV-6 went back into remission. I don't have a colon and 8 months of antibiotics took its toll. I ended up with chronic urticaria and MCAS. It took me a couple of years to figure out that Vit E was helpful to partially heal my gut. Hives gone and more than halved the food sensitivities.

I wish you all the best.

 

[heapsreal]

Davis has already completed DNA viruses and they have looked for bacterial infections as well (unclear if it's completed yet). At the moment they are testing for fungal, parasite and RNA viral infections, which has turned out to be a harder task. Anyway, I reckon they would have found a common bacterial infection like mycoplasma by now if it was really more present in the severe patient group than in controls. But in any case, we are probably a lot clearer on this in a year or so.

I haven't been really following the research for awhile. Was there results of his pathogen study showing any particular infections??