Zebra
Senior Member
- Messages
- 879
- Location
- Northern California
He says he just can’t stay awake and is exhausted. The sleep doesn’t help him feel better. He just keeps having to sleep due to the exhaustion. He hasn’t gotten back to his baseline in 6 weeks. He used to be able to go downstairs 1 time a day and take a shower every 2 weeks but now it’s only a trip to bathroom,
Hi, @Hope_eternal
I can hear, and understand, the concern in your posts about your son's sleeping habits and declining baseline.
Seemingly out of nowhere (perhaps a delayed reaction to attending a far away medical appointment), something similar happened to me.
I was NOT able to stay alert or awake during the day. I would get up for breakfast, I could maybe keep my eyes open for an hour afterward, and then I would sleep through the afternoon and get up for dinner.
So, I was averaging only 2 meals a day in an already underweight body, so I kept my meals clean, nutrient rich, and high in good fats.
The exhaustion and drowsiness was so overwhelming I actually got a second carbon monoxide detector, but all was well in my environment. The issue was my disease and/or an exacerbation of my disease from unknown cause.
My primary care physician speculated that perhaps I caught a virus during one of my rare excursions outside of the house for a medical appointment. I'm skeptical of that, given that folks in my area tend to mask up during respiratory illness season, as do I, but I suppose it's possible.
Eventually, I cycled out of the overwhelming sleepiness and was able to stay awake during the day, but I am sorry to tell you I have not yet returned to my previous baseline.
I just wanted to share my experience in case it is comforting to you.
There are many ups and downs in this disease, and when things trend downward, I spend way too much time trying to figure out what I did, what went wrong, and am I ever going to cycle out of it. My goal in 2024 is to approach this differently as that mindset is too taxing.
Hugs!
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