Pain is really the entire thing , it is what takes us to this point. I'm so sorry .
You don't know yet though , what if you find the source and can correct or greatly minimize it? I know we are all looking for that , but some find it .
The pain is horrible . It is relentless and takes us far away from ourselves , we get a glimpse or memory and it seems so far away or almost scary , to realize how far removed from life we have become plus the enduring and enduring all most in case. We all want to live , we want to get better and live actual lives .
You may get to . We don't know yet, your story is still being written . You've done all this footwork , had testing , traveled to see more doctors . Thoroughly investigate with the oncologist , maybe it is auto immune, I know that's not exactly a good thing but who knows , maybe you do well with IVIg or something else
Some do well with IVIg . Some don't . It's like a toss up really .
Your gi is the mystery. How can so little be known ?! I'm sure you have and I don't mean this as anything but a possible help to you , but have you seen a really good Eastern medicine dr?
Do you have finances to go abroad? The biggest mistake I made was not going to China when the acupuncturist said he would get me connected there. Would you try that ? They have whole programs for very little cost . Something to consider maybe .