Thanks @
justy I hope it will settle down soon, and I will be glad when get to proper accommodation, so can unpack and be more freedom to eat/do whenever wherever etc
@
Valentijn You are very kind. I hope your next sessions with Iv's will be as successful as first lot for you. Perhaps see you at clinic tomorrow!
Well, in general first day is done and over. I didn't sleep much last night (and same for last few nights actually) and after travel and packing I was so wrecked this morning. I scrambled out of bed for breakfast last minute, then went back to bed.
We had to check in properly after breakfast and leave in VSL and Readisorb to fridge. We didn't have passports with us so I went back up stairs to grab them. I mean I really struggled to even put one foot in front of other, I was so bad, not been this bad in ages. I have had great improvement in energy and therefore ability to do things in last 2 months which was amazing help in getting to this point. I don't think i would have made it possible if i was bedbound for last weeks trying to organise it all. But in last few days i did worry i was pushing it too far doing too much, i feel i am due a crash. probably what is wrong with me now. but hopefully i can rest up in next few days.
Anyway, after a sleep after breakfast, got up again around 12 to get ready. it was so hot i had to change into shorts and vest, such a pain trying to find everything packed nicely away in case. I will get more organised on that front tomorrow.
Arrived at clinic about 10 mins before 1, the nurses were on lunch so I didn't mind waiting.I was still waiting by 1.30 I worried the secretary didn't pass it on to nurses that I arrived like she said. I remember Valentijn mentioning this before. It didn't take too long to set up when I did get called in. A little sore and a little trouble but it was ok.
It was a bit surreal watching the drops dripping away. Only taken like 2 years and 10 months to get to this point. I felt a little bitter about it , kinda criminal in a way if that makes sense. Originally, I said I didn't mind sitting afterwards but when it was in, the nurse told me to stay lying down, and it was right thing as i was so tired. Eventually my mum came in and joined me, herself being a nurse was super nosey and inquisitive about the set up etc. I kept telling her to shhh! I regretted the shorts as it was freezing with A/C on, will wear long pants tomo.
my arm did sting a little every now and then, and fingers felt a little numb. I don't know if this is to be expected or is a bad thing? I had slight headache by the end of it. But that is probably from the tiredness and rushing, rather than a reaction. I did have migraine on Sat and Sun anyway. I am not sure how much I can use my arm now , am trying to keep it straight and not avoid use it. But it is a bit restrictive. I had to ask my mum to tie up my hair twice. And was difficult to do up my seat belt and take on and off cardy. Another thing I realised is most of my sweaters and cardys are fairly tight fitting and the bandage is quite thick so hard to squeeze into it.
It took longer than an hour to complete, I think we were back at the hotel room til 3. Then went for another sleep haha! I couldn't really sleep properly, drop off fully so only resting. it was so hot and stuffy in the room, it was making me dopey so went for a stroll in park to wake me up a bit. Went for another after dinner. Now just resting before sleep and do it all over again tomorrow!
I am still confused over whether I am down for 4 or 5 days, I think KDM wrote 5 days on green slip, the secretary told me 5 days a week at last visit. And I emailed her again about week and half ago, to confirm this, as someone told me clinic didn't open on Fridays. Her email said 5. But when I asked the nurse she said some weeks are open Friday but not every week. Then I wanted to know which Fridays to come in on, so she checked my file and then told me only to come in 4 days a week. the more off days the better, but wonder why was told wrong in first place. I mean surely the secretary checked my file also before replying to email too and why KDM say 5 days too.
I will ask a different nurse tomo maybe.
my phone is gone all dodgy and my mum's ipad won't connect to wifi even though my laptop does, she wants to google treatments and transport etc. But what we came here for, seems to be working so far. But a long way to go yet and 3 months still feels forever.
