@Charles555nc
I read your other thread saying how it took you three of four attempts before the arv's worked, once you cleared away all the other bad stuff from your body finally... happy for u that the truvada (contains viread,right?) and raltegravir worked in the end once you cleared the way for the arv s finally to be more bioavailable(if that's the right word) and effective for this foreign looking RV.
Just wanted to echo the point u made about the raltegravir. I myself couldnt tolerate it alone without viread. Also taking Viread (reduced number of days:75% adherence monthly) accounts for most of my improvement and pulsing in raltegravir (at 30% adherence monthly) helps keep the improvement going as very effective bitherapy for now with essential multivitamins as in cancer for reinforcement as an extra protective buffer for these strong meds.
http://www.m.webmd.com/diet/features/cancer-supplements
I hope the severely ill can also likewise be helped somehow to first reinforce their weak bodies and that people can improve and benefit from modern day treatments,antibiotics to get them better too for their disease along the way case by case and then to eliminate this slower replicating rv once it can be seen more visibly even in the sickest(perhaps with reduced arv protocol). Hard job and very specialized stuff all this. I think it's best left to RV (hiv,htlv, et cetera) discoverers to educate the doctors on all this.
@ScottTriGuy
@Charles55nc
questions/emerging
Do they give rituximab in hiv aids?
Depends perhaps on initial cd4 count and if dr's can raise it first...? Hard job....Or they give it if cancer/lymphomas develop...?
Is rituximab given in well defined hiv/well defined htlv diseases? When new bcells grow do they get reinfected from day1 again or much later on? Is dual therapy needed arv+rituximab? Are there other drugs like rituximab? Better to get arv's first and then rituximab? Or vice versa?? What role for ivig in all this even if minimal preparatory effect?
@Charles55nc
Do you take the arv s full dose daily or do u adopt the reduced days protocol as per iccarre protocol? No arv fatigue? :
http://www.ncbi.nlm.nih.gov/pubmed/25833895
Four days a week or less on appropriate anti-HIV drug combinations provided long-term optimal maintenance in 94 patients: the ICCARRE project.
-not suitable for all hiv aids patients but perhaps a good option for a fair number seemingly..
Some dr's maintain that the hhv6 is nastier than the HIV in some of those hhv6+aids patients.the definition of aids is hiv+copathogen,right? Can it also be hiv alone plus a weakened immune system either by the hiv itself or just the immune system wearing itself out as time goes by?
A wealth of information out there now.
Just got to be aware of it all I guess and not exclude anything and take on board emerging patient experiences.
New times. 2015 ! It can only get better from here on in and all patients can learn from each other !