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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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My current list of meds & supplements for CF & Bartonella - would love to see others

Levothyroxine 112 MCG - once daily
Cytomel 25 MCG - twice daily
Niagen - once daily
Hyrdocortisone 20 MG before breakfast, 5 MG with lunch
Lumbrokinase 40 MG - once daily
NAC 600 MG - twice daily
Clarithromycin 500 MG - twice daily
Valcyte 900 MG - twice daily
Rifampin 300 MG - twice daily
CoQ10 100 MG - three times daily
ALA 525 MG, ALC 225 MG - three times daily
Metagenics Ultra Flora Balance (Probiotics) - twice daily
Naltrexone 6 MG - once daily
Serrapeptidase 80,000 units - once daily
Zinc AG - 40 MG - once daily
Vitamin D (as D3 Cholecalciferol) 5,000 IU - once daily
Designs for Health Multi Vitamin - once daily
Prothera Methyl Balance B-Vitamin/TMG - once daily

I'm 39 & have been sice for 2.5 years, before this VERY active, healthy, career....
 

ChrisD

Senior Member
Messages
472
Location
East Sussex
My Current protocol for CFS/Fibro and possible Bartonella:

Morning:
Vitamin D3 - 5000iu
Evening Primrose Oil - 6,000mg
Thiamin - 100mg
Riboflavin - 100mg
CoQ10 - 120mg
Chondroitin 1200mg Glucosamine 888mg MSM 500mg
Selenium 200ug
Arginine 500mg
Ferrous Biglyscinate - 20mg
B5 Pantothenic acid - 500mg
Ginseng - 500mg
Licorice Root - 900mg
Vitamin E 400iu

For possible Bartonella:
Resveratrol 50mg
Cat's claw 900mg

Mitochondrial Supps:-
Acetyl-L-Carnitine - 750mg
D-Ribose - 5G
Creatine Monohydrate - 5G
NAC - 700mg
BCAA - 10g
Vitamin C -5G - 40G daily

Evening:-
Nicotinic Acid B3 - 100mg
Magnesium 150mg
B6 -10mg
Biotin - 300ug
L-Theanine 100g
 
Messages
22
Location
UK
For CFS

- Methyl B12 - 1000mcg twice a day (but will continue to titrate up)
- Adeno B12 - 750mcg twice a day - titrating up
- L-methylfolate (currently 6400mcg spread over 4 times a day but will titrate up to fix folate insufficiency caused by B12 as needed)
- Potassium Gluconate every 2 hours (titrated to deficiency symptoms - currently taking approx 2500mcg a day as powdered supplement).
- Jarrow B-Right b-complex - 500mcg twice daily
- L-Carnitine Fumarate - 125mcg (titrating up)
- Co-Q10 swanson - 200mcg
- SAMe Jarrow - 200 mcg
- TMG - 500mcg
- Lithium swanson 5mg
- Probiotic 10b
- Vit C - 500mcg twice a day
- Liqorice root - 1800mcg
- Ribose - 5g three times a day
- MCT oil (as part of ketogenic diet)
- Ribose 5g three times a day
- HCL during meals
- Omega3 fishoils - 2-6+ capsules per day
- Vitamin D - 3000- 6000 (spray)
- Magnesium - 1000mcg
- Zinc 30mg
- Selenium 300mcg
 

sharks

Senior Member
Messages
141
AM:
250 mg famvir
2,000 mg Vit D

Midday:
Vitamin B complex: 1 pill ( I don't remember the doseage)
Culturelle probiotic: 1 pill


Night:
Zinc: 15 mg
Magnesium: 250 mg
Fish oil: 1000mg
Famvir: 250ng

I'm about to add vit c to my regime. And maybe evening primrose oil.
 

sharks

Senior Member
Messages
141
I just tried evening primrose oil and it gave me heart palpitations. So I don't know if I should stick with it or not