Sue, my best wishes to you!
AZT, like all drugs, has side effects but if you have someone knowledgeable following you, that makes a big difference. As with everything, risk and benefits must be weighed individually.
If you do get better and feel up to it at some point, please ask your doc to publish a case report in the medical literature. If he doesn't want to do it, ask if someone at the WPI would be interested. One person does not make a study but case reports are what can initiate formal studies.