I don't have any chronic viruses as far as I know. Tested for about all infectious diseases they can test for.
All that came back positive was Lyme disease and possible previous exposure to Rocky Mountain Spotted Fever (not active).
I've made it a long way with Lyme treatment, but my heart isn't better. It's probably better than it was, but the chest pain never goes away.
I found out that I have CFIDS/ME by a respected CFIDS doctor.
I don't know what to do. I was told the chest pain was bacterial but I could not tolerate any of the antibiotics or even herbs they use for the infection bartonella. I never tested positive. I am quite afraid of the medications they use for bartonella from bad experiences.
I also have severe anxiety, but it doesn't necessarily correlate to the amount of chest pain, and the chest pain doesn't necessarily correlate to the amount of anxiety. Taking tranquilizers often doesn't help the chest pain, but sometimes it can. The chest pain is usually better with my feet up, or lying down. A bit of orthostatic intolerance I guess. Oh, and something else doctors have trouble understanding: My anxiety is not caused by anything situational. It is purely physiological and neurological. It's been this way for a couple years, and nobody has ever changed my opinion from day 1. I know this for sure, and I hate that doctors still try to challenge me about this. Is it an ego problem, do they not want to believe me, or are they just poorly educated? I have tried many types of psychotherapy anyway, all unsuccessful. Some helped a tiny bit, and some made me worse (counselor pushing me to do more things).
It's troubling finding a local doctor to take my concerns seriously. I feel like my heart is getting eaten away. I am 24 years old, and failed the VO2 bike test they use for CFS. I am in the 1 percentile.
I want my heart back, and I am lost. No Lyme doctors around here anymore, but my treating doctor is trying.
I don't believe CFS can cause my type of chronic chest pain and brutal anxiety. Don't get me wrong, my anxiety is actually a lot better than it used to be (and I can do things now), but my doctors have commented they have never seen anxiety as severe as mine in their career. That would make you feel special, wouldn't it? I never had anxiety in my life prior to getting ill.
I am not getting herxes from Lyme treatment like I used to. I attribute part of the anxiety and chest pain to Lyme, but the other 50%+ must be from something else.
I am now lost between Lyme and CFS. This combo sucks!
Not sure if anyone could help me. The ER thought I had pericarditis last visit, but PCP says not true (I trust his judgement). He said they assumed that because of my clinical symptoms were pretty consistent with it and my C-Reactive Protein (inflammation) was elevated.
All that came back positive was Lyme disease and possible previous exposure to Rocky Mountain Spotted Fever (not active).
I've made it a long way with Lyme treatment, but my heart isn't better. It's probably better than it was, but the chest pain never goes away.
I found out that I have CFIDS/ME by a respected CFIDS doctor.
I don't know what to do. I was told the chest pain was bacterial but I could not tolerate any of the antibiotics or even herbs they use for the infection bartonella. I never tested positive. I am quite afraid of the medications they use for bartonella from bad experiences.
I also have severe anxiety, but it doesn't necessarily correlate to the amount of chest pain, and the chest pain doesn't necessarily correlate to the amount of anxiety. Taking tranquilizers often doesn't help the chest pain, but sometimes it can. The chest pain is usually better with my feet up, or lying down. A bit of orthostatic intolerance I guess. Oh, and something else doctors have trouble understanding: My anxiety is not caused by anything situational. It is purely physiological and neurological. It's been this way for a couple years, and nobody has ever changed my opinion from day 1. I know this for sure, and I hate that doctors still try to challenge me about this. Is it an ego problem, do they not want to believe me, or are they just poorly educated? I have tried many types of psychotherapy anyway, all unsuccessful. Some helped a tiny bit, and some made me worse (counselor pushing me to do more things).
It's troubling finding a local doctor to take my concerns seriously. I feel like my heart is getting eaten away. I am 24 years old, and failed the VO2 bike test they use for CFS. I am in the 1 percentile.
I want my heart back, and I am lost. No Lyme doctors around here anymore, but my treating doctor is trying.
I don't believe CFS can cause my type of chronic chest pain and brutal anxiety. Don't get me wrong, my anxiety is actually a lot better than it used to be (and I can do things now), but my doctors have commented they have never seen anxiety as severe as mine in their career. That would make you feel special, wouldn't it? I never had anxiety in my life prior to getting ill.
I am not getting herxes from Lyme treatment like I used to. I attribute part of the anxiety and chest pain to Lyme, but the other 50%+ must be from something else.
I am now lost between Lyme and CFS. This combo sucks!
Not sure if anyone could help me. The ER thought I had pericarditis last visit, but PCP says not true (I trust his judgement). He said they assumed that because of my clinical symptoms were pretty consistent with it and my C-Reactive Protein (inflammation) was elevated.