@Jenny TipsforME I believe many cases of post-cancer treatment fatigue are also considered MUS.
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Has anyone come across a comprehensive list of which conditions are now lumped into the MUS agenda?
........
I heard some mention of asthma.
Here is more from the presenter et al:
https://www.intechopen.com/books/a-...chosomatics-the-new-neuroconnective-phenotype
Chapter 8
Joint Hypermobility, Anxiety, and Psychosomatics — The New Neuroconnective Phenotype
By Guillem Pailhez, Juan Castaño, Silvia Rosado, Maria Del Mar Ballester, Cristina Vendrell, Núria Mallorquí-Bagué, Carolina Baeza- Velasco and Antonio Bulbena
DOI: 10.5772/60607
Abstract: In this chapter, after summarizing the concept and diagnosis of the Joint Hypermobility (Hyperlaxity), we review case control studies in two directions: Anxiety in Joint Hypermobility and Joint Hypermobility in Anxiety disorders, studies in nonclinical samples, review papers, and one incidence study. Collected evidence tends to confirm the strength of the association described two and a half decades ago. Common mechanisms involved include genetics, autonomic nervous system dysfunctions, and interoceptive and exteroceptive processes. Considering clinical and nonclinical data, pathophysiological mechanisms, and present nosological status, we suggest a new Neuroconnective phenotype in which together around a common core Anxiety-Collagen hyperlaxity, it includes five dimensions: behavioral, psychopathology, somatic symptoms, somatosensory symptoms, and somatic illnesses. Somatic illnesses include irritable bowel, dysfunctional esophagus, multiple chemical sensitivity, dizziness or unsteadiness (central vestibular pattern), chronic fatigue, fibromyalgia, glossodynia, vulvodynia, hypothyroidism, asthma, migraine, temporomandibular dysfunction, and intolerances or food and drug hypersensitivity. It is envisaged that new descriptions of anxiety disorders and also of some psychosomatic conditions will emerge and different nosological approaches will be required.
Keywords: Anxiety disorders, joint hypermobility, hyperlaxity, psychosomatic medicine, phobic disorders
Full chapter is Open Access and there is also aPDF.
Published just in time for ME Awareness Week...
Journal of Mental Health
Editorial
“Lumping” and “splitting” medically unexplained symptoms: is there a role for a transdiagnostic approach?
Trudie Chalder & Claire Willis
Pages 1-5 | Received 03 Mar 2017, Accepted 05 Mar 2017, Published online: 09 May 2017
Full paper and PDF
http://dx.doi.org/10.1080/09638237.2017.1322187
There's a lot of annoying stuff in there. I can assume most readers will be able to see it for the junk it is, but then I remember how few people in academia seem to bother checking references.
What's the best thing to do here?!
I can assume most readers will be able to see it for the junk it is, but then I remember how few people in academia seem to bother checking references.
I would hope that the average person would at least be able to see the ridiculousness of CBT to treat cancer treatment fatigue. Surely anyone who knows someone who's had radio or chemo would get it that their fatigue is not due to psych issues.While most readers here on PR will see this for the junk it is, sadly that is unlikely to be true for their wider readership.
Amazing and depressing how these Chalder et al have the barefaced cheek to build a whole model of treatment for PPS/MUS on the foundation of PACE etc. Deeply worrying that they are still getting away with it.
What would happen if one of them came down with ME...?It's lucrative and career enhancing, and we are a serious threat to their empire building. They know we know their trial is a shambles, and one of the biggest scandals in UK medicine of late. The whole edifice would come tumbling down if the truth about the trial was exposed. They're going way beyond ME now, and that is why they are so utterly desperate and ruthless in promoting their junk science. The field seems to be marinating in rampant ableism and neoliberal models of healthcare that serve anyone but the actual patients.
What would happen if one of them came down with ME...?
Is it me or does that sound like the start of a dodgy advert?Do you feel your symptoms are stopping you from living life the way you would like to?
Are you suffering from low mood as a result of the impact the symptoms are having on your life?
Are you having to stop taking pain medication, or would like to stop?
Asthma used to be considered "psychosomatic" and it was undertreated. People died.Possibly from this, post 580, this thread:
I've bolded asthma.
Personally I'm now uncertain if asthma is widely being claimed directly under MUS. (Seems a very hard sell to me!) There does seem to be a desire to bring in CBT as an adjunct to established asthma care, going by what I've seen of reviews of cbt/asthma studies on cochrane.org. I just glanced through.
From Cochrane, it seems CBT is proposed as a means of improving asthma patients compliance with monitoring and treatment, and/or also to help people with anxiety and stress which can in some cases exacerbate symptoms.
And reduced need for and more efficient use of medication thus lowering treatment cost was mentioned.