Our old friend, Vincent Deary...
The AHSN Network
https://www.ahsn-nenc.org.uk/about-us/the-network/
"In May 2013, England became the first country in the world to create a nationwide system integrating the work of healthcare, academia and industry: the Academic Health Science Networks (AHSNs). The AHSNs have a unique opportunity to align: education, clinical research, informatics, innovation and healthcare delivery in support of economic growth.
"There are 15 AHSNs across England. Their activity is focused on two interrelated imperatives: improving population health and generating economic growth in our regions. AHSNs have also been established to deliver a step-change in the way healthcare providers identify, develop, adopt and spread new technologies..."
https://www.ahsn-nenc.org.uk/project/226/
North East and North Cumbria
Improving Patient Pathways for Persistent Physical Symptoms
"Persistent physical symptoms (PPS) such as Chronic Fatigue Syndrome, Irritable Bowel Syndrome and Fibromyalgia account for at least 15% of GP consultations and account for up to 30-50% of referrals to specialists..."
http://new.ahsn-nenc.org.uk/wp-cont...pPatientPath-Case-Study-30-AUG-2016-FINAL.pdf
Improving Pathways for Persistent Physical Symptoms: Case study
"For many Persistent Physical Symptoms there is now a good understanding of why symptoms occur and good evidence for the best treatments."
" We developed a range of resources for health professionals and people with PPS, which to our knowledge, is the first of its kind in the UK.” Dr Vincent Deary, Project Lead, Health Psychologist and Reader in Health Psychology, Northumbria University
Resources:
We need to talk about symptoms: an introduction
Information for health professionals on Persistent Physical Symptoms
http://new.ahsn-nenc.org.uk/wp-cont...ed-to-talk-about-symptons-an-introduction.pdf
We need to talk about symptoms: narratives and explanations
Information for health professionals on Persistent Physical Symptoms
http://www.ahsn-nenc.org.uk/wp-content/uploads/2014/12/387698SA-We-need-to-talk-Narratives-HR.pdf
We need to talk about symptoms: a GP Perspective
Information for health professionals on Persistent Physical Symptoms
http://new.ahsn-nenc.org.uk/wp-content/uploads/sites/3/2014/12/WNTT-GP-Perspective.pdf
Top Tips for successful Persistent Physical Symptoms consultations
http://www.ahsn-nenc.org.uk/wp-content/uploads/sites/3/2014/12/Top-Tips-for-PPS-Final.pdf
What’s causing my symptoms?
http://new.ahsn-nenc.org.uk/wp-content/uploads/sites/3/2014/12/Whats-causing-my-symptoms.pdf
Persistent Physical Symptoms Resource Pack
This resource pack brings together a range of resources from NHS organisations, charities and research institutions to support health professionals and people with Persistent Physical Symptoms manage a range of symptoms.
http://www.ahsn-nenc.org.uk/wp-content/uploads/sites/3/2014/12/Resource-Pack-Final.pdf
A presentation here (if you can stomach it):
Improving care pathways for people with Persistent Physical Symptoms
Dr Vincent Deary, Joanne Smithson, Dr Michaela Faye.
https://www.rcplondon.ac.uk/file/2177/download?token=pIT1Eu2Y
"Who is the PPS patient?
"Before falling ill, the vast majority of participants in our
research had enjoyable, full, often stressful, jobs and
careers, juggling multiple interests and commitments.
Many vividly describe their ‘crash’ out of the work:
“I used to work 50 hours a week, then 25, then 10 then
I gave up”.
“I’d been a hard worker and I was having problems and
- for a GP to turn around and say to somebody who
could work so hard, that there’s nothing wrong with
you? It just blew a fuse in my head”
The AHSN Network
http://www.ahsn-nenc.org.uk/about-us/partners/national-ahsns/
Eastern Academic Health Science Network
East Midlands Academic Health Science Network
Greater Manchester Academic Health Science Network
Health Innovation Network (South London Academic Health Science Network)
Imperial College Health Partners (North West London Academic Health Science Network)
Kent, Surrey and Sussex Academic Health Science Network
North West Coast Academic Health Science Network (The Innovation Agency)
Oxford Academic Health Science Network
South West Academic Health Science Network
UCL Partners Academic Health Science Network
Wessex Academic Health Science Network
West Midlands Academic Health Science Network
West of England Academic Health Science Network
Yorkshire and Humber AHSN
------------------
http://fabnhsstuff.net/2016/06/06/new-persistent-physical-symptom-service/
Report:
The new Persistent Physical Symptom Service
"The Persistent Physical Symptoms Service offers an integrated pathway for all patients with persistent symptoms (rather than due to any underlying pathology) in North, East and West of Cumbria.
There was some wonderful feedback – with most attendees commenting that the PPSS launch is an exciting and much needed development
• “I think it is very exciting and long awaited development in Cumbria. It should fill a large hole for patients who in the past have had nowhere to go.”
• “Thrilled about such a positive resource for patients.”
• “Excited for patients and a well needed service.”
• “It sounds like a really useful and rounded resource for managing so very difficult to help patients”
• “Hallelujah! At last we have some support in managing these challenging patients. I look forward to working with the PPSS team to improve the lives of these patients.”
• “Seems too good to be true. Already have a list of patients who would benefit.”