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I have ME and was recently diagnosed with MS. Now I’m about to have a conversation with my neuro about what MS drug (disease modifying therapy) to try first.
Apparently... I’ll have some say in the matter, so I’m being way optimistic and hoping I’ll find something that helps ME symptoms...
Any experiences or thoughts out there? I know about the anecdotal report of copaxone helping a pwME (Rachel Riggs) and of course there’s all the stuff (good and bad) about Rituximab but I don’t think that one’s an option anyway. And I’m just guessing that since Ritux didn’t help pwME in trials, other CD20 depleting drugs like Ocrevus wouldn’t help either.
Tecfidera (dimethyl fumarate) looks interesting... Like copaxone it alters the T cell population somehow but it’s mechanism of action isn’t entirely understood. It’s more affective for MS than copaxone, so that’s a plus too.
I wish I could read more easily right now... so frustrating. If there really is an autoimmune subgroup of ME, maybe I’m in it and these drugs might help me
?
They are just as likely to make me worse but fingers crossed.
Apparently... I’ll have some say in the matter, so I’m being way optimistic and hoping I’ll find something that helps ME symptoms...
Any experiences or thoughts out there? I know about the anecdotal report of copaxone helping a pwME (Rachel Riggs) and of course there’s all the stuff (good and bad) about Rituximab but I don’t think that one’s an option anyway. And I’m just guessing that since Ritux didn’t help pwME in trials, other CD20 depleting drugs like Ocrevus wouldn’t help either.
Tecfidera (dimethyl fumarate) looks interesting... Like copaxone it alters the T cell population somehow but it’s mechanism of action isn’t entirely understood. It’s more affective for MS than copaxone, so that’s a plus too.
I wish I could read more easily right now... so frustrating. If there really is an autoimmune subgroup of ME, maybe I’m in it and these drugs might help me
They are just as likely to make me worse but fingers crossed.