Thanks for the information
@SWAlexander. The answers to Autoimmune Encephalitis are beginning to come in and that's very good.
I'll ask my new neurologist about the test (wish me luck....she's new and looks at me like I'm a Martian). My old neurologist of probably 35 years died a year ago. I feel like I'm wandering in the wilderness. It takes time to build a relationship with a good doctor. Personalities are important.
I have Herpes Simplex I (always a cold sore, but rarely) as also found in my shingles attacks (nightmare city) and now Autoimmune Encephalitis. I have never read of anyone having this a second time and it does affect the very young.
I would like to say that it's standard procedure for a spinal tap to be done and sent to the Mayo or Cleveland Clinic. I had two b/c it was in the early days of the illness. Nothing of great importance was known.
To make it easier for those who may be affected in the future, even though there are tests. it is of upmost important for a neuro-psychiatrist to make a diagnosis about how the brain has been affected. Many people have ended up in mental hospitals b/c of the symptoms of this illness.
Being in my 70's it was all a bit of a surprise. It's serious and can, of course, cause death. I'm trying to stay on top of this as well as my two types of epilepsy (caused by the encephalitis?), a heart attack at the same time and multiple stents. I will say that I feel my short-term memory was affected by all that occurred.
Thanks for the information you so readily share. Have you been affected yourself? Yours, Lenora