Hi everyone,
I'm so glad this forum is here. I've been really busy working with my new functional med Dr and trying to get some improvement. We have been a little successful but in the process of trying to figure this all out i came across something very interesting that i thought i would share for those suffering with reoccurring mouth ulcers.
I have reoccurring mouth ulcers as well as vaginal ulcers (sorry if this is TMI but it leads to what i was able to find out). The vaginal ulcers since my early teens lead to a diagnosis of lichen sclerosis about 8 years ago. I've been sick since 2008 with the fatigue that has waxed and waned. It seemed like when i would "crash" i would get flare ups of the LS and mouth ulcers. As the years went on it got more and more consistent.
I've had lots of Drs try and tell me that they thought it was bechets. But my ob Dr confirmed it was not that. She was able to show me in a book what the ulcers would look like if it was bechets.
I recently went to the functional medicine Dr and he did a ton of tests. One of the things i tested positive for was ebv. Not just the high titers either. I tested sky high for the antigen d test. This is usually high within 3-4 months of an infection. I had mono in 1993. So it might be a chronic infection.
One of the less common side effects of ebv are mouth ulcers and vaginal ulcers. BINGO. When i started researching the mouth ulcers mine had originally started out looking like that. I went to my ob and told her about the test and asked her to show me what the ulcers would look like if that was what was going on. It looked exactly like when it started for me as a teenager.
So i know there is a subset of patients on here that have mouth ulcers that get really bad. I know I've spent many hours on here looking for answers. If you get these terrible mouth ulcers i would look to see if you can find a Dr who will order these tests for ebv. It might be an answer that no one else has considered.
I hope this helps someone!
Thank you
Kelly8
I'm so glad this forum is here. I've been really busy working with my new functional med Dr and trying to get some improvement. We have been a little successful but in the process of trying to figure this all out i came across something very interesting that i thought i would share for those suffering with reoccurring mouth ulcers.
I have reoccurring mouth ulcers as well as vaginal ulcers (sorry if this is TMI but it leads to what i was able to find out). The vaginal ulcers since my early teens lead to a diagnosis of lichen sclerosis about 8 years ago. I've been sick since 2008 with the fatigue that has waxed and waned. It seemed like when i would "crash" i would get flare ups of the LS and mouth ulcers. As the years went on it got more and more consistent.
I've had lots of Drs try and tell me that they thought it was bechets. But my ob Dr confirmed it was not that. She was able to show me in a book what the ulcers would look like if it was bechets.
I recently went to the functional medicine Dr and he did a ton of tests. One of the things i tested positive for was ebv. Not just the high titers either. I tested sky high for the antigen d test. This is usually high within 3-4 months of an infection. I had mono in 1993. So it might be a chronic infection.
One of the less common side effects of ebv are mouth ulcers and vaginal ulcers. BINGO. When i started researching the mouth ulcers mine had originally started out looking like that. I went to my ob and told her about the test and asked her to show me what the ulcers would look like if that was what was going on. It looked exactly like when it started for me as a teenager.
So i know there is a subset of patients on here that have mouth ulcers that get really bad. I know I've spent many hours on here looking for answers. If you get these terrible mouth ulcers i would look to see if you can find a Dr who will order these tests for ebv. It might be an answer that no one else has considered.
I hope this helps someone!
Thank you
Kelly8