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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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More improvement!

Sallysblooms

P.O.T.S. now SO MUCH BETTER!
Messages
1,768
Location
Southern USA
I have kept improving from my POTS and I drove yesterday after church. I also go to church (large place) with no wheelchair now. I can walk so much more and do so much more now.

Has anyone else been doing better? I sure hope so.




churchdaysmall.jpg
 

Nielk

Senior Member
Messages
6,970
That's soooo exciting Sally! You look great and I also hope that you keep on improving and telling us about it. It's really uplifting.
Thank you!
 

Sallysblooms

P.O.T.S. now SO MUCH BETTER!
Messages
1,768
Location
Southern USA
Thank you. From not being able to lift my head from my:In bed: pillow when POTS struck to having fun and having joy back, it is so wonderful.:balloons:
 

Sushi

Moderation Resource Albuquerque
Messages
19,934
Location
Albuquerque
I have kept improving from my POTS and I drove yesterday after church. I also go to church (large place) with no wheelchair now. I can walk so much more and do so much more now.

Has anyone else been doing better? I sure hope so.


Sally,

This is wonderful! And it is great how you post pictures to show us great stuff. You look great.

And yes, I too am doing better. I think quite a few of us are. And though others aren't, take courage, new treatments and research is on its way. I trust there will be an answer for each of us.

Sushi
 

ramakentesh

Senior Member
Messages
534
Little things make a big difference when your sick with POTS. So fantastic stuff!

I tend to get pots in flare ups and then it calms down
 

SOC

Senior Member
Messages
7,849
I have kept improving from my POTS and I drove yesterday after church. I also go to church (large place) with no wheelchair now. I can walk so much more and do so much more now.


Great news, Sally! :balloons: Congratulations! :balloons:

A convertible bug -- that's SO you! :D

Has anyone else been doing better? I sure hope so.

My daughter went on a 12 mile hike over rough terrain on Saturday. :victory:

There are PWME getting a lot better. It gives hope to the rest of us who are still fighting. Thanks, Sally!
 

Ocean

Senior Member
Messages
1,178
Location
U.S.
That's a lot of improvement Sally, from having trouble just lifting your head to driving. Great news! Do you know what aspects of your treatment have helped so much with POTS? I could use all the help I can get with it too.
 

taniaaust1

Senior Member
Messages
13,054
Location
Sth Australia
Glad to hear you are improving :)

I think my POTS is improving too..but I dont know if anything is doing is causing the improvement. I think thou it may be a change from POTS into having more orthostatic hypertension then I had previously... if I get one of these I dont tend to get the other at the same time.
 

Tristen

Senior Member
Messages
638
Location
Northern Ca. USA
Very happy for you Sally :balloons:

Yes, me too on the improvements. Have come a long way from that bed bound abyss.

Nice bug too, silver convertable in the sun! Have fun!
 

Sallysblooms

P.O.T.S. now SO MUCH BETTER!
Messages
1,768
Location
Southern USA
Tristen, so glad you are improving. My bug is Blue, called Heaven Blue. I love the name of the paint. Her name is Bluebonnet (State flower of Texas!)

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