sianrecovery
Senior Member
- Messages
- 828
- Location
- Manchester UK
I know, I should have already changed her - I will.
Today, I went back to her with my glad tidings that T3 was really helping. And that the doc I am paying to treat me for ME as no one in the NHS will suggested my recent history of calcifcations and high blood serum calcium and medualllary sponge kidney means I should get my parathyroid hormone tested. It was normal back in 2008, but it can fluctuate. And that I am out of money and will she please prescribe me lithothyronnine or send me to an endocrinologist.
No. The NHS according to her dont allow the prescribing of T3, (no evidence base) the parathyroid hormone test is expensive and my last blood calcium was normal (after years of abnormal), so no test,no point in sending me to an endo, try swimming for the pain of the calcified shoulder (!), no interest in reading the ME docs letter, and its her job to manage NHS resources (implication - not my time with malingers like you). I point out I know that, I had years working in the NHS, that I have spent everything I have to treat a condition that the NHS has never offered me more than a talking therapy for.
What got me was her absolute lack of interest in what was now working.
It shouldnt have to be this way.
Today, I went back to her with my glad tidings that T3 was really helping. And that the doc I am paying to treat me for ME as no one in the NHS will suggested my recent history of calcifcations and high blood serum calcium and medualllary sponge kidney means I should get my parathyroid hormone tested. It was normal back in 2008, but it can fluctuate. And that I am out of money and will she please prescribe me lithothyronnine or send me to an endocrinologist.
No. The NHS according to her dont allow the prescribing of T3, (no evidence base) the parathyroid hormone test is expensive and my last blood calcium was normal (after years of abnormal), so no test,no point in sending me to an endo, try swimming for the pain of the calcified shoulder (!), no interest in reading the ME docs letter, and its her job to manage NHS resources (implication - not my time with malingers like you). I point out I know that, I had years working in the NHS, that I have spent everything I have to treat a condition that the NHS has never offered me more than a talking therapy for.
What got me was her absolute lack of interest in what was now working.
It shouldnt have to be this way.