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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Hi Aerose91,
I see you have had a SPECT scan done recently.I have been checking re that recently(Amen Clinics).If you live in Uk please let me know where you had it done and how much it cost..Thanks.
Yes I had a SPECT because y brain is in such bad shape and my MRIs came back clean, and I was sick of being so such while people told me I need a psychiatrist.
I had mine at Amen Clinics, the quality of the scan was very good. There are different packages you can choose from that involve a resting scan, post exertional scan, QEEG and various meetings with psychiatrists.
I chose to do the basic package with just the resting scan and a meeting afterward with a doctor to review my results. They also gave me everything presented in a nice binder with multiple copies if my results. The total was $2400, not cheap. The scan itself was $1,100 but you have to do some of the follow up visits with psychiatrists in order to be allowed to do the scan- the total is 2 days.
That was all the money I had left for that scan but I thought it was necessary, and it was
Here are copies of my scans. The colored ones are external blood flow and the blue/red ones are deep activity.
Im thinking this is what I may have and am going to try follow this route,got appointment to see a geneticist not sure how this could be tested for.
I am told my brain fog is due to lactic acid. Recently, baking soda in water was suggested to me. Has anyone here tried this?
Correcting mitochondrial dysfunction may be one of the major future pharmacological targets for treating many diseases, as many diseases’ mitochondrial dysfunction appears to be a common pathological denominator. Lactic acidosis is also seen as a complication in malaria [25] indicating mitochondrial involvement, and more recently Chronic Fatigue Syndrome [26]. DCA has also been shown to help considerably in diabetes [27] and familial hypercholesterolemia [28].
A very little known information that many do not know is clove oil, is strongly antiviral against Fibromyalgia and CFS. — As to the muscle pain, a treatment of malic acid and magnesium chloride and sodium bicarbonate should work. The usual treatment is 500 mg malic acid, 2000 mg magnesium chloride and 5000 mg sodium bicarbonate. This will act as a buffer, reducing lactic acid buildup and reduce pain by getting the PH in the muscle to stabilize.
I have experienced EXACTLY what you describe since 1993, after mononucleosis. I have almost taken my life many, many times. Like you, the disease was mostly in my head, but eventually progressed to a total systemic situation.
I am a little better now.
I am told my brain fog is due to lactic acid. Recently, baking soda in water was suggested to me. Has anyone here tried this?
Thanks
xox