There is a demonstration in Newry on Saturday 13th May
I posted this on another thread and have sent it to other #MM organisers:
As you will be aware there has been increasing pressure to get the PACE trial retracted. This has managed to attract NO PUBLICITY or recognition in the mainstream UK Media so far.
If there is one thing that has detrimentally affected how ME is 'viewed' and 'treated' across the world it is this scandalous piece of 'research' (along with the name change to CFS).
Outside our community, very few people are even aware of what it was or how it has influenced policy by Health Depts everywhere, stifled proper biomedical research, and could now be leading us to be confined to obscurity and added to the list of MUS by the WHO.
I understand that #MillionsMissing aim is to raise ME awareness, but is this enough?
Is there anyway that a message of Retract PACE now be included in the protests? It might make people who are unaware of our plight find out more. It could also be the only way the real issues get to be exposed if the media were to investigate what the PACE trial represents.
This could be the foundation stone on which the whole ignorant BPS approach to ME is built, which once destroyed , will bring the whole lot down. This would be some achievement.
Please consider it.
I was thinking maybe a couple of placards/signs with 'Retract PACE' on it ??