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Has anyone taken Mestonin, how did you feel? I started it a while ago but decided to stop was I was in the early stages of a relapse so it was impossible to know whether any symptoms were drug or relapse related.
I recently re-started and my arms feel different. I have this weird thing when I have a certain type of relapse coming on that I start sleeping a lot and then I have this weird feeling in my arms. It’s my warning sign.
Since being on mestonin my arms feel odd, the drug works on small fibre neuropathies so I have no idea if it’s a sign it’s doing some good and more communication is going on or if it’s an unwanted side effect. I was mostly on it for my bowel but hoped it would help with all the ME symptoms that can be attributed to small fibre neuropathies.
Has anyone else had this when starting it?
I recently re-started and my arms feel different. I have this weird thing when I have a certain type of relapse coming on that I start sleeping a lot and then I have this weird feeling in my arms. It’s my warning sign.
Since being on mestonin my arms feel odd, the drug works on small fibre neuropathies so I have no idea if it’s a sign it’s doing some good and more communication is going on or if it’s an unwanted side effect. I was mostly on it for my bowel but hoped it would help with all the ME symptoms that can be attributed to small fibre neuropathies.
Has anyone else had this when starting it?