BadBadBear
Senior Member
- Messages
- 571
- Location
- Rocky Mountains
So a minor update.
I am still mostly in 'remission'. I can't do aerobic activity, but can do a lot of regular stuff now. I can do whatever I need to during the day, if it doesn't involve too much walking or other aerobic exertion. For example, I can do a short slow hike up a steep grade IF I go really slow. I rest as needed the day after any near-aerobic effort. I can do a lot of busy work most days, and have packed my camper and gone camping a few times now by myself. Hadn't tried that since I've been ill, but its going well and have gone for a week to visit my aunt. I can drive myself up to about 175 miles in a day (with frequent stops to get out and move).
I had been having problems with DOMS (delayed onset muscle soreness, sore muscles for a few days after any new type of exertion like walking farther than normal). The PEM is gone, but the DOMS was not pleasant. I read a study on curcumin's ability to alleviate muscle soreness and have been trying it, and it seems to completely eradicate the DOMS. Curcumin has made me want to try doing a bit more than I was doing, since there's less payback. I have not had a very long trial of it, so we'll see if the effect can last.
I am still taking inositol and it still has positive effects. The hypomania has subsided for the most part. I have had to decrease my dose as it was too energizing for good sleep, so now I'm taking a half tsp AM, quarter tsp at noon, and none the rest of the day. It seems to be 'enough'.
Overall my sleep has improved, though, which I think is also related to inositol vastly improving everything else. I don't need melatonin or any sleep supplements anymore, and I sleep all night.
I notice other things like being able to digest starch better and I feel like my gut is functioning better overall.
Add to that, I'm still decreasing my thyroid meds. I've gone from T3 only to Armour + T4 to T4 only, and now I'm decreasing my dose of T4. I'm down from 125 mcg to 75 mcg. My FT3 is at a great level, and I'm curious to see how my next labs look with this current decrease to 75 mcg.
I feel like my body is still making slow, steady improvements. I am looking ahead and thinking I may try going off of Famvir at some point to see if I can maintain. My doc wants me to try LDN at some point, and I think if I can stabilize on that, either late this year or early next, I'll try taking a break from the Famvir if things go well.
I am still mostly in 'remission'. I can't do aerobic activity, but can do a lot of regular stuff now. I can do whatever I need to during the day, if it doesn't involve too much walking or other aerobic exertion. For example, I can do a short slow hike up a steep grade IF I go really slow. I rest as needed the day after any near-aerobic effort. I can do a lot of busy work most days, and have packed my camper and gone camping a few times now by myself. Hadn't tried that since I've been ill, but its going well and have gone for a week to visit my aunt. I can drive myself up to about 175 miles in a day (with frequent stops to get out and move).
I had been having problems with DOMS (delayed onset muscle soreness, sore muscles for a few days after any new type of exertion like walking farther than normal). The PEM is gone, but the DOMS was not pleasant. I read a study on curcumin's ability to alleviate muscle soreness and have been trying it, and it seems to completely eradicate the DOMS. Curcumin has made me want to try doing a bit more than I was doing, since there's less payback. I have not had a very long trial of it, so we'll see if the effect can last.
I am still taking inositol and it still has positive effects. The hypomania has subsided for the most part. I have had to decrease my dose as it was too energizing for good sleep, so now I'm taking a half tsp AM, quarter tsp at noon, and none the rest of the day. It seems to be 'enough'.
Overall my sleep has improved, though, which I think is also related to inositol vastly improving everything else. I don't need melatonin or any sleep supplements anymore, and I sleep all night.
I notice other things like being able to digest starch better and I feel like my gut is functioning better overall.
Add to that, I'm still decreasing my thyroid meds. I've gone from T3 only to Armour + T4 to T4 only, and now I'm decreasing my dose of T4. I'm down from 125 mcg to 75 mcg. My FT3 is at a great level, and I'm curious to see how my next labs look with this current decrease to 75 mcg.
I feel like my body is still making slow, steady improvements. I am looking ahead and thinking I may try going off of Famvir at some point to see if I can maintain. My doc wants me to try LDN at some point, and I think if I can stabilize on that, either late this year or early next, I'll try taking a break from the Famvir if things go well.