Hi svetoslav and floydguy,
How long have you two had CFS?
I have this theory that most people don't get PEM in the early days of the illness and DO get PEM after they have been ill for quite a few years.
I also think that if people recover quite a lot and go in or near remission, the PEM can go away again.
I've been ill 27 years now and the PEM comes and goes for me, sometimes it is really bad, sometimes not at all.
Also, though PEM is unusual in Lyme, there are some people with Lyme who do get PEM, so this whole PEM issue is not as clear cut as some doctors seem to think.
How long have you two had CFS?
I have this theory that most people don't get PEM in the early days of the illness and DO get PEM after they have been ill for quite a few years.
I also think that if people recover quite a lot and go in or near remission, the PEM can go away again.
I've been ill 27 years now and the PEM comes and goes for me, sometimes it is really bad, sometimes not at all.
Also, though PEM is unusual in Lyme, there are some people with Lyme who do get PEM, so this whole PEM issue is not as clear cut as some doctors seem to think.