I would like an option in the poll for either small improvements or still in early stages of treat,emt/too soon to say.
Whilst I have been a patient for two years, due to MCAS and an inability to tolerate meds and treatments and having a long, complex illness the gains and treatment itself is VERY slow.
For the record one particular treatment that I wasn't able to continue because I can tlive in Brussels gave me a two month remission to about 70% functioning from around 25%. Am now back to around 25-30%.
Another treatment has kept me from being all day in bed to being able to gently potter around the house. Unfortunately I have started having atypical anaphylaxis to this particular treatment so have had to discontinue.
So you can see just how complex treatment can be - I need IV abx and don't know if I will tolerate them or will be more sick while on them. If I don't tolerate them then my next options are limited. -not KDMS fault, simply the nature of my complex illness.
I have never been told any success rates, just told he will do his best for me, and to be fair he hasn't given up on me like other Drs have and keeps on keeping on, as do i.